Hi Sue
Good luck for tomorrow, it’s the begiining of the end.
I have my first oncology appointment on Wednesday, hopefully will have my PET scan results and generally find out more.
Lynne xx
Hiya lyndylou, good luck for Wednesday, take someone with you if you can, they give you so much information it helps to have another pair of ears, although they gave me loads of pamphlets and things too. Write down any questions you have and refer to them. Shouldn' be long for planning and treatment after that.
yes I ve finished but wasn't prepared for how harsh it was once finishing they did tell me on the last day that it gets worse before it gets better and they certainly weren't lying ! However I have turned the corner now there is definitely light at the end of the tunnel!
Sleep sleep and more sleep! And don't be frightened to take the pain relief ask if you need more or a stronger dose. Thinking of you take care xxx
Hi Gilliebean
It’s lovely to hear from you. Sorry to hear that you have been suffering but pleased to hear that you have turned a corner. Have you broken down on the bottom and sore to pee? That’s how I am at the moment and I have 4 days to go. I feel a little tired today but not too bad at the moment. A little apprehensive when I finish as everyone says it will get worse and I am feeling it painful at the moment . When is your follow up wi5 the doctor? Have you had any appointments for the MRI yet? I have been thinking of you and wishing you all the best. Thinking of you. Mandy Xx
That' the first week of treatment over but I'm a bit concerned about how I'm feeling already. My chemo pump came off Friday ( week1 done) but my mouth is really sore, even my throat. My stomach is playing up a bit, no diahorrea as such but I'm going to the toilet a lot and the wind is awful. Im' already felling very tired surely it' too early for all of this? Or perhaps I'm being a big baby. Not feeling positive at all at the moment.
a week down that’s great and I think his you’re feeling is quite “normal” there’s such a big relief that you’ve actually started but then the reality sets in.
I onlyhad one intravenous chemo then went into tablets but the first week my mouth was sore and it hen it settled down.
my hubby nicknamed me windy miller- so I understand that as well - I definitely found the first week challenging then I sort of got into a routine and it was wee bit better although I’ll not say it gets easier I think you just have to accept that for the next few week you’re going to feel crap. The tiredness is really draining so make sure you sleep whenever you can and let other people help you - it makes them feel better too feeling they are doing something for you.
i know it’s hard to stay positive and I did get very tearful some days - just keeping counting down the days I had a big countdown calendar and scored off ever day.
if anyone told me when I just stared I’d be out in Portugal just now I’d never have believed them - you’ll get through it.
take care and be kind to yourself you’re in my thoughtsts
Ohhh Sandra thanks for your reply, it certainly makes me feel a bit better. I couldn' remember any of you saying you felt so ill so early. Everything you've mentioned is like me. I do actually feel a bit better today and even managed a little walk with my daughter and the dogs. The family are looking after me, they won' let me lift a finger. I am glad to be getting on with my treatment and now looking forward to getting to the end.
Hi Sue
Have been thinking about you all week and wondering how you were getting on. I think my treatment is going to start just as yours finishes.
It ones of those thing isn’t it where you know the treatment will be horrible and make you feel unwell but you just have to go through it to beat this. I really hope you don’t become too ill and as it’s day passes you are nearer to the that light at the end of the tunnel.
Lynne xx
