Oxaliplatin - horrible reaction

Yesterday I had my second treatment of adjuvant chemotherapy, first treatment was very managable, but yesterdays was not so nice :( not sure I want the third.... anyone else have a problem with this drug, my treatment is combination of this and Capecitabine

JB 

  • just watching bake off! how about warm choc fudge cake? know what you mean about cold food and drink. am also reading book written by a dietician for people with cancer, trying to get myself as well nourished as poss before next round. if doesnt improve going to have to get some advice from dietician. think body still adjusting to life without half my colon.

    might get myself some gloves like you, sounds like its helping.

    thankyou for your support, going to get my head in the zone as i dont think i have been. lot to get your head round and ive felt overwhelmed with it all. i guess we all reach that moment at different times, that moment when we realise we have to muster that extra strength and fight, even when we feel like just curling up and pretending its not really happening. 

    keep going my friend xxx

  • evening, been thinking of you and thought id just write and see how you are. hope youre managing and not having too many problems with this round. thinking of you xx

  • Hi Mouse

    oh much better this 3rd round, magnesium dose 1hr infusion first then som gluclose and walla a better reaction, fingrs still a little tingly which is annoying but I am not complaining as last time it was doing worse things lol gloves definitely helping too.  I worked all week as well even though chemo was Tuesday so feeling proud although really tired and find myslf slipping off for an hours sleep, but I was working from home so that did hlp.  Monday I will go into the office, provided not too much rain.

    My son came around today with a large mcdonald and chips and banana milk shake hahaha bad I know but I am tired of fruit veg etc.... don't know how I drank the ice cold shake but I DID!! :) :) 

    Now I have had my smarties, showerd and ready for bed, watch the England rugby game and then probably snooze.... hopefully right through.

    How are you getting on? You are all always on my mind from this forum and I always wak up wishing everyone a painless, fun filled day if possible.... I know its not always the case but thats what I always hope for :)

    All things considered I am doing good, roll on 20th Oct 4th chemo and we half way, lot less than what a lot of people have but I am rady to get shot of this journey hahaha

    Love and light and big healing hugs

    JB x

    sorry about missing 'e' lol notebook giving up me thinks oops better buy a new one sometime, I am sure you will understand my message hehehe

     

  • so glad youre doing better this time round!! sounds like youre doing brilliantly with work and the madonalds! my insides seem to be settling down bit so just hoping they continue to so that i can get back on track.stiill feel bit frail inside, not sure whats going on, was really good up until first treatment. 

    dominoes pizza is what im waiting for but think its way off that yet! eggs and ready brek yawn.zzzzzzzzzzzz. 

    its really helping being able to chat to you, thankyou, giving me some much needed confidence to do what has to be done. hoping this time next week will be over worst and recovering for next one. 

    hope you continue well, let you know how it goes xx

  • morning,sorry early i know but cant sleep, not through worry just wide awake. well had second treatment today and so far so good.

    dose of oxiwotsit lowered and has made things more manageable, walking much easier and tingling in hands better, so far......as know last time it was few days in it all went a bit pear shaped! so far just about keeping nausea under control but think other end starting to party which might scupper my plans for getting out for a walk tomorow. hoping things continue better as the whole thing of going back for another treatment after last time was becoming a bit of a thing so its really helped to have got it done and for it to so far be going more smoothly.

    how are you doing? hoping things as ok as they can be and youve not had too rough a time of it.

    keep me posted and take care xx

  • morning, hopre things going ok, been thinking of you and really hoping treatmentt continuing well without too many unwanted side effects.

    in for my thrid this week if all well, last one more tolerable as anti sickness meds just about covered things. hands, like you can be bit challenging at times esp now colder outside and of course the fatigue...........sounds like a ladylike word for ive been hit by a wall of exhaustion and am flat out shattered.

    frustrating but learning just got to go with it.

    take care and keep wrapped up warm its getting cold out there xxx

  • Afternoon Mouse

    much better third time although feet sore and took 9/10 days to fel human..... that oxiwatsit is horrible hahaha anyway building my self up for the fourth round which should be this Tuesday everything being ok with bloods.... really don't want to do this, but hey what can I do LOL DEAL WITH IT!!! :)  I haven't had dose lowered so hoping he will do this time round as the feet and hands and throat a ral issue to deal with and like you say its gtting colder :(  I have had to put heating on this weekend much to my disgust and electricity man may have to chase me for their bucks hahaha 

    Good to hear that you had a better treatment its comforting to know someone is being managed as hate hearing when someone is suffering ..... long may the good treatments continue!  Fatigue is also increasing for me I am sleeping like never before, used to be able to get away with 5/6hrs sleep now I need double that, so try on the weekends and so far its getting me through my working week.  Tummy been a big issue for me even though they have given me something to help control it, its not perfect :( metalic mouth now and then yuk ..... but haribo sours helping ... oh and liqurice :)

    I am in Monday for bloods, Tuesday for chemo what days you in.... I will keep you in my thoughts hun and pray its a good one for you, hugs from me and take good care of you xxx

    Oh I did put on a stone!!! Was surprised but happy as I went done to 10st after surgery and been trying to get it up just a bit, will settle now at 11st :) 

    Take care my friend you in my thoughts

    let me know how it goes when you up to it and I will you, sincee I am one treatment ahead 

    JB xxx

     

     

  • morming, just quick one to say hope all goes well today. im in too today for 3rd so be thinking of you.

    tingly fingers crossed for as smooth a time as possible xx

  • Morning :)

    You in my thoughts too, heres hoping for a smooth ride!! By the way at the hospital getting my bloods done I had time for reflexology session..... was awesome!!! Today I am feeling the best I ever felt hahaha shame its about to to be ruined!!! And I found that udderly smooth cream hmmm giving it a go :)  Feeling udderly positive today hope you go well my friend!! Catch you on the flip side soon and we can compare :)

    Best wishes and lots of virtual hugs

    JB xx

    Going to have a bacon and egg sandwich befor I go .... why not! :)

  • Hi JB,

     Oxaliplatin has lot of side effects :

    After Infusion easily geting cold feelings on Face and exposed areas,Tingling feeling in hands and feet,thus one has to cover his head and face with Cap, cover hands and feet with  gloves and socks which will help you agaist cold sensations,don't  drink cold water as it may cause you chocking in throat because it causes spasm in throat and trismus (jaw pain).Keep your bedroom worm during winter nights as  otherwise in the morning time your head may feel very cold and uncomfortable.

    Oxaliplatin also causes Periphery sensory and motor loss eg foot drop when in early stages eg your slipper may stay in your foot while other slipper has come off while enering into your room.

    Management: cover up exposed parts,don't have ice cream or cold drinks,don't walk bear feet on cold surface, if weakness of any part of body develops inform your Oncologist which may take 1 year to recover. For Tingling of hands and feet try Strong Vit B Compound.