I have just been told by my consultant that I have low to intermediate DCIS and that he recommends a lumpectomy or a mastectomy, possibly followed by radio therapy. My initial research seems to indicate that doctors are beginning to investigate the necessity of this very drastic operation (let alone the gruelling side effects). The LORIS clinical trial which is currently recruiting compares monitoring i.e. not operating with the efficacy of surgery which further suggests that medical thinking goes that way. My understanding is that the statistics say that low to intermediary DCIS in a woman puts her at double the risk to the general population.
I would like to hear from other women who are diagnosed with low to intermediate DCIS who are considering NOT having surgery.
And has anyone got any recommendations for clinics/ hospitals/ research centres who are investigating other approaches?
