Hello Gabrielle, I am Parfait, I am hoping you read my story on this subject, I too have low grade NHL, stage 4 large follicular B cell Lymphoma. I have been living a very good life for 16 years, which has included treatment after my 6th year and 7 th year, I had it in my bone marrow upon diagnosis from having a bone marrow biopsy. Now 8 years after treatment no appearance in the bone marrow, you should understand that low grade lymphoma is chronic, the other grades are curable true, but with low grade you can get another grade so that only means treating symptoms of 2 forms of Lymphoma, it doesn't mean your low grade goes away if you get a higher grade too. So you should toss out that notion and concentrate on healing yourself from within, it sounds to me that you have a lot to live for and you must think in positive terms of being well to take care of your lovely grandchildren. My life is all about thinking positive, being in the moment, staying focused at the task at hand, the most important task we have Gabrielle is to look forward to each new day with hope. Breathe, eat, rest, love and accept love. You are human so remember that, we all have our flaws, cancer is a difficult one, but you can live well as I have with the side of your brain that remembers happiness, and joy.you are not your disease you are you! Everyday get yourself back a bit stronger and you will turn around and realize the topic isn't just Lymphoma. The topic is what you make it. Believe me the beginning of diagnosis is vey stressful, but now that you have one whole year under your belt it is time to live in this next year moment by moment. My moments have stretched into 16 years living with NHL. I wish you good luck Gabrielle. You will do this, I have, so why not you too!

This is from me Parfait

hi gabrielle

how are you today,and it`s nice to see you feeling a bit more positive and also more support for you from africa and parfait which is always welcome so keep posting as it really does help,so for now take care and take it easy.

jeff hugz to you.

Thank you so much Parfait. Your words make a lot of sense and I will do my best to take the same sensible outlook. 16 years is amazing - that's wonderful. Stay well now and please keep in touch.

gabrielle x

Hi Jeff

I am feeling much more positive about things and hearing all your stories helps a lot. I don't have my ultrasound appointment yet but am not allowing myself to worry about that. Hope you are a bit less fatigued. Keep posting me and let me know how you are getting on.

gabrielle xx

Hi Jeff - hope all goes well for you on Monday. I have my ultrasound on Thursday.

gabrielle xx

hi gabrielle

thanks for that and good luck to you also for thursday,as it is with me,i sort of feel a little bit under pressure as someone at work has requested that the occupational health get my back on my normal job,but then again it doesn`t make any difference because i will only do my normal job if and when i feel fit enough to do so,but you always get one that has to try to chance their arm and make themselves look clever,but again as it is i am having trouble with my stomach which is something i will discuss with my consultant amongst other things,i am also going to mention that site i told you about and how excited that they seem to bee about the future of treatment and see what they know of things so i will keep you informed about everthing as soon as i can,so for noe take care and try to keep them positive thoughts going.

jeff. hugz n xx

Hi Jeff

Just ask all the questions you want answers to. As you say, there is always one at work who tries stir things up. Occupational Health CANNOT make you resume your normal job if you are not up to it. Let me know how you get on. My consultant says the night sweats are not connected with the lymphoma but I am not convinced. Will see if the ultrasound shows up any probs with the spleen etc. Get back to me after Monday and let me know what they say and what answers you get.

Take care

gabrielle xx

hi gabrielle

how did things go for you the other day then,and how are you doing,as for my hospital visit on monday things went reasonably well as my bloods were normal for the second time in succession and everything seems to be going well on the cancer front so i dont have to go back for another 2 months,although i have been having trouble with my stomach which may be the hiatus hernia that i suffer from so the doc recommends that i have the camera down my throat for further investigations but i can honestly say that i am not a fan of that but if it has to be then so be it,anyway i hope all is well with you and i look forward to heariong from you.

  jeff hugz to you x

Hi Jeff

Had my ultrasound - the radiographer said she couldn't find anything "lurking" in my stomach so that's good - next clinic appointment on 20 Feb. Having the camera down your throat is not pleasant I know but I guess the experts know best what to do - hope it's not too bad for you. I am still having the night sweats but not quite as much so don't know what that is all about. Glad your bloods were normal - I'll have a blood test before my next appt. Keep in touch and I hope the stomach troubles improve.

gabrielle xx

hi gabrielle

i just thought i would enquire how are you doing today as i have been busy at work and dont seem to get as much time to check up on how people are doing but its the weekend again so a bit more time on my hands,as for me i have just finished the months supply of tablets that the doc gave me for my stomach and although there has not been a great deal of improvement i am going to try one more week on my normal dose of tablets and then if things are not right i will discuss with the doc about the camera down my throat although i am not convinced that it has anything to do with what i eat but we will see ,and as for work i am not doing too bad either as itold you they wated me back on my normal job but i am not ready for that yet but i feel i am getting stronger and they have got me doing something else for the time being and it can get quite strenous but i can manage so i will keep you up to speed on that one,anyway i hope that you are fine and i look forward to hearing from you so take care and keep positive.

  jeff hugz x