Ovarian granulosa cell tumour

Hi everyone. I am new to this but really interested in any information or experience anyone has of granulosa cell tumour and specifically the oestrogen producing type. I am recovering from a hysterectomy and removal of both ovaries because of an enlarged and solid looking ovary which turned out to be this cancer. I'm not on hrt and enjoying the hot flushes and sleepless nights-not! Thanks in anticipation.

  • Hi Bridie, My fiancé has just been told that in her operation to remove a cyst on her ovary, they found a Granulosa tumour. She was under the impression she was having a referral for fertility treatment when she was told this!! They have just done the ct 125 blood test and told us we need to wait up to five months for the results!! Surely there is something we can do?? If you have any advice it would very much appreciated. Many thanks Rob

  • Please search FB for GCT Survivor Sisters! This group is worldwide but predominantly US based.There are almost 900 members now. These women have been so supportive and knowledgeable in GCT! 

  • Hi there I'm really hoping you may reply music girl ..your story is identical to mine and curious to see if you went on to have a family as mine ruptured and I was advised full hysterectomy etc however I have found out I'm pregnant 2 weeks after diagnosis and they cant give me any info how my hormones could affect any cells that may be lurking from the rupture ...so I am facing an awful choice and I can't find anyone who had a ruptured then went on to have. A pregnancy