Ovarian granulosa cell tumour

Hi everyone. I am new to this but really interested in any information or experience anyone has of granulosa cell tumour and specifically the oestrogen producing type. I am recovering from a hysterectomy and removal of both ovaries because of an enlarged and solid looking ovary which turned out to be this cancer. I'm not on hrt and enjoying the hot flushes and sleepless nights-not! Thanks in anticipation.

Parents
  • I'm so glad to find this tread.  I too was diagnosed with GCT and also only after the tumour had been removed (Sept 2007).  On the original scan they diagnosed polycystic ovaries but luckily my GP felt my symptoms indicated something else and she asked for additional tests. It turns out that the increased hormone levels from the ovarian cancer had promoted the development of endrometrial cancer.  The endrometrail cancer was recognised when the other tests my GP asked for were carried out.  I had a hysterectomy for the endrometrial cancer and they removed my ovaries too.  After the ovaries had been removed I was told 'there's something odd about the left ovary - its been sent away for testing.  They told me at my next appointment about the GCT.

    I'm grateful that it was found and that the treatment I've received was so quick and efficient.

    I'm now five years on and there's no sign of any recurrence - hurrah.   I feel like I've been so lucky and it took me a long time to accept being grateful for that rather than feeling like a fraud and wondering when the really bad stuff was going to start.  I know that so many people have a horrible time during their cancer treatment and I couldn't help feeing guilty that I 'got off' so lightly.  It's a relief to read on here that I'm not the only one that felt similarly.

    One thing that's concerned me in the last few years is the matter of checking for recurrences.  Knowing that the GCT was only recognised for what it was after it had been removed and sent to the lab makes me wonder how likely it will be picked up on the scans and examinations I've been having.  And although my consultant has agreed to continue the checks for another five years he plans to stop then,  He's also said that the inhibin blood tests may not be useful because of the increased levels of this hormone in my blood because of the original tumour.  Thinking about it that was five years ago so I'll ask about that at my next appointment - which is just a couple of weeks away,

    Thank you ladies for the extra information.

Reply
  • I'm so glad to find this tread.  I too was diagnosed with GCT and also only after the tumour had been removed (Sept 2007).  On the original scan they diagnosed polycystic ovaries but luckily my GP felt my symptoms indicated something else and she asked for additional tests. It turns out that the increased hormone levels from the ovarian cancer had promoted the development of endrometrial cancer.  The endrometrail cancer was recognised when the other tests my GP asked for were carried out.  I had a hysterectomy for the endrometrial cancer and they removed my ovaries too.  After the ovaries had been removed I was told 'there's something odd about the left ovary - its been sent away for testing.  They told me at my next appointment about the GCT.

    I'm grateful that it was found and that the treatment I've received was so quick and efficient.

    I'm now five years on and there's no sign of any recurrence - hurrah.   I feel like I've been so lucky and it took me a long time to accept being grateful for that rather than feeling like a fraud and wondering when the really bad stuff was going to start.  I know that so many people have a horrible time during their cancer treatment and I couldn't help feeing guilty that I 'got off' so lightly.  It's a relief to read on here that I'm not the only one that felt similarly.

    One thing that's concerned me in the last few years is the matter of checking for recurrences.  Knowing that the GCT was only recognised for what it was after it had been removed and sent to the lab makes me wonder how likely it will be picked up on the scans and examinations I've been having.  And although my consultant has agreed to continue the checks for another five years he plans to stop then,  He's also said that the inhibin blood tests may not be useful because of the increased levels of this hormone in my blood because of the original tumour.  Thinking about it that was five years ago so I'll ask about that at my next appointment - which is just a couple of weeks away,

    Thank you ladies for the extra information.

Children
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