I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
I hope your feeling ok and its not taken its toll with you. I am sorry to hear you can't have the Taxol but if its giving you a bad reaction then maybe they can come up with something else. I have found that each cycle takes longer to recover from. I am still feeling weak and breathless since my last one and for the first time feeling low.. I was trying to explain to a friend that I am sick of not been able to do normal stuff like shopping, because I keep getting infections I have been advised to keep away from people and she said well its not forever and although I know its not its begining to get me down. I had a moan to David while in Hospital about being prodded and poked and injections since Feb and he was shocked ( as I was ) to think doom and gloom as its just not me.. But because its taking longer to recover from the chemo. Anyway enough said.
Good luck to our team leader ( JACKIE ) for tomor and we will all be sat in the room with you and keeping you awake.....
Love to all ladies. xxxxxxxxxxxxxxxxxxxxxxxxxx:blush:
Sorry you are feeling down.It is understandable but miserable for you.My nurse told me "you are allowed to feel moody or feel sorry for yourself for 2 days out of the 3 week cycle i was on. Then kick yourself up the butt and pin a smile on "I tried to follow her advice although it wasnt always easy.You cant possibly feel perky all the time that you are being poisoned so appologise to everyone beforehand and wallow for a while.There are miserable people out there who arent having chemo !!! You are allowed to grieve for how things have changed.
Have a look on the Jokes site that im abloke set up.Made me giggle.
Thanks for all the kind thoughts will have plenty time for replies after tom! Had forgotten about the hyper that comes with the steroids, mine was very bad as I take steroids anyway so ended up sleeping for about an hour a night for the first 3 days!!!
I've had a really busy but enjoyable 2 weeks so am a tad shattered! Looking forward to the chemo as hopefully will lose the itchy skin and the power in my muscles should improve.
Sorry about the hospital stay Eileen you must be really bored with it happening each time. Everybody is going to get down at times its only natural but it can be destructive if left unchecked so we get plenty practice keeping the timings short!!!!
Good luck for when the results come though Dot, hopefully you'll get a date for your chemo soon.
Jayne, Rose and all the others I will catch up with you soon, think I may need to print the thread out to get my poor brain around it :shocked: . Meeting up soon a great Idea though I'm not sure where everyone is from - me I'm about 20 miles from Norwich in Norfolk. I have a feeling somebody is from Wales so could make for some interesting arrangements
I am from Manchester but moved to Pembrokeshire in April just as I was having all my scans and they eventually transfered my notes down here. Best move I made in my life....
Thanks for the thoughts must have worked cos so far so good! only 3 attempts to get cannula in (hate needles!). Can't believe how quickly the taste changes kick in, had dinner at 4 on way home and all I could taste was salt (my mate checked and it wasn't!) thats a new one for me, have been using far more salt since my first lot of chemo :mischief:. Anyway can't complain cos thats all so far, no sickness, no reactions and no pains, not even on a 'high' with all the steroids so may actually sleep tonight!
That is great it all went well and very interesting as since I had my first chemo I have a craving for salt. I never used it before but now I have it on everything. Hope you manage to get some sleep tonight and you carry on being fit & well over next few weeks....
I am still on my daybed all day as energy levels are zero but hey ho onwards and upwards ...
Hello Girls hope your all ok :blush: Eileen xxxxxxxxx
Agree about the salt, never used much till after the first dose of chemo but still needed it after chemo finished, so was suprised to say the least this time! Do seem to remember that the 6th dose of chemo changed my taste completely, totally threw me cos all the tactics I'd developed didn't work, only things that made it bearable was that normal taste would resume as not due anymore chemo!
Hoping to sleep tonight as don't feel so hyper this time, key time is going to be around 7 days cos if I clot that will be about the time.
Had a thought for you to chat with your onc about, For the whole duration of chemo i am put on 'prophalactic' antibiotics usually septrin (can't spell proper name at this point!), just a small dose taken daily because with the long term steroids and the chemo they are worried about me developing infections due to the double immuno-suppression. Its worked for me so far so may be helpful to you or you may already do this and its still not good enough.
I used to have the odd day when I wasn't sure why I woke in the morning as would fall asleep within an hour of getting up and that went on all day! Apart from the odd ocassion (1 or 2 per session). The rest of the time I would push myself and try and do something even if it was just a stroll around the garden (not a small garden but still only 10-15 mins pottering) I always feel that you need to use energy to produce it. Even when well I'll have the odd day when I just manage to sit around and I never feel good after it! Not suggesting for a minute that your not knackered and totally agree it get worse as the treatments go on but if you can try and do a little several times a day it does help (also look up cancer fatigue for some pointers).
Once treatment starts it can only get better................... eventually :)
Keep smiling (pref laughing cos it produces a feel good hormone same as exercise but laughing is easier!!!!
Eileen hope you feel better soon, sorry you have had such a poorly time with it. Jackie hopefully you will keep well this time, fingers crossed to you both, and everyone else here. Rose I have been reading more sections of this site and I noticed how much hope and encouragement you offer to people on here, I want you to know how much I admire the way you handle all of this xx
I rang about chemo and I have been told 26th to see the professor and 29th for chemo, I was irritated by this as I had been told that they wanted chemo to start 3 weeks after the op and now it would be 8 weeks, I grumped a bit and my husband persuaded me to go out to have a look around the shops (a rare event for me). I did and had a lovely day, the evening I spent chatting with my friends on an online chat programme, all was well and I felt really good, didn't get to bed until 3am and I thought I would sleep well, I woke up at 5am with the screaming heebiejeebies.
All I could think of was that they had told me that the cancer I had was aggressive, that I was clinically clear of cancer and although I didn't have to have the chemo they would like me to as they couldn't operate if it came back. Then my thoughts went wild, the tumours were in both ovaries one had surfaced and adhered itself to the pelvic wall, all I could think of was that any cancer cells could roam free now, my mind was a mess. I created this delay by asking for chemo at a hospital near me. My husband woke up and calmed me down saying he would ring the hospital at a reasonable hour. He did and I got to speak to a chemo nurse, she was lovely and tried to assure me that this was not unusual, I told her the reason I was worried was the now 8 weeks, she suggested I contact the hospital who did my op on Monday and ask them if they were happy with it, which is what I will do.
I have no idea why this suddenly hit me like this, it just isn't like me, I hated that I worried my husband too, sorry but I just needed to rant!!
