I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Good luck for your scan.Hope you have good news .Did you manage to get hold of any cream for your feet?I have had a couple of weeks of being breathless and it turned out to be thyroid problems,hope yours is nothing sinister.
I cannot get that cream, but staying OFF my feet, which is what I was told to do, has helped...I keep meaning to write to my husband's brother, who lives in Englandm and see if he can get it for me - I will do that next...Thank you for your good wishes and I am thinking the breathing may just be the fluid buildup starting..I had almost 4 litres removed in surgery in February, when all my surgery was done...and my MD told me I had emphasema....GEEZ...Still makes me so damn mad that for a year I went and zip - and now so many same stories, that they missed it, didn;t ask, didn;t tell...ya know - Well, I will post you all tomorrow with my results...keep fingers, tosies, eyes and butt cheeks crossed!!!! LOL !! Hugs.....
I have read your message to Dot and I agree with you, also surely they would have waited for a few more chemo cycles before putting a time scale on this secondary cancer. And would have thought that the Lung specialist should be the one who has the final call, or bring it up at the MDT meeting next. I still hope its a mistake and for it not to have showed up on the X-ray 6 weeks ago it won't be that big ?
The time before last when I was in Hospital with the infection a 47 year old woman had Lung cancer and had the chemo then was waiting for the Radiotherapy to start at Singleton and then they discovered she had a brain tumour. As you can imagine they were devastated so after tears and everything that goes with it she said they would also give Radiotherapy in the brain as well. The week after ( this is when I was in ) The Dr came and said it was a mistake and the tumour is a very small lesion which they zap after the lung cancer is under control. Well if you could have seen Jan's face when he told her, it was like winning the lottery. So there is alway's hope.
I had my 5th chemo on Tuesday so fingers crossed for weekend when I normally go in with infections. My count was 2.0 on Tuesday so a bit higher than last time. I also had the Neulasta injection last night.
I hope everyone else is doing ok, but my thoughts at this time are with Dot as I am sure yours all are. I hope you are still reading what we are thinking Dot we are here all the time for you even if your up messaging.
I wanted to see how you are doing with your chemo, hopefully you will stay out of hospital this time xxx
Thanks everyone for the lovely words and thoughts.
Eileen they found several tumours all quite small 22mm being the largest, but it is because it is in my lymph glands that they have given me the diagnosis, seems the growth is in my left lung. I did push for the diagnosis because of having had a cancer free one at first, I think my anger got the better of me and I was trying to prove a point about my xray being clear, yet I am now inoperable.
I am a lot calmer now, the right side of my rib cage has been very tender all around my midrift hurts (hurting in back too at times), they checked me out and didn't think it was anything, Jackie I was tested while I was there bloods and urine and everything was fine.
Eileen that is wonderful that they misdiagnosed that lady, I do know diagnoses can be wrong, thankfully it was so for her.
I had my wig fitted and it is lovely, looks so real, it is urchin style very short and blonde, my hair colour is matched perfectly, so I spent ages yesterday playing with it lol
Lovely to see you again, your wig sounds good, lets hope you can maybe go out for a lovely meal with your family when your feeling up to it. I know you prob won't do for a while but that is what is keeping me going, being able to go out and be normal for a while.
Will you continue with chemo or just think why bother ? I always said if I was diagnosed with terminal then I would come off the chemo and at least not feel bad all the time. Its a hard decision to make I suppose until your hit with it . I just want you to be pain free so you can enjoy your family life. As you have noticed I am up early the last 2 days as the steroids are keeping me awake, I have my red face with them as well so am taking Benydril plus for that. I also have indigestion as well. How are you feeling from side affects ?
Keep smiling Dot & as I have said you are in my thoughts all the time and have been telling my family and friends about you so they all send there best wishes to you and your family.... A very popular lady xxxxx:love:
sleep evades me too, that is what I loved after the op I was always tired lol...now I am up anywhere from 4am on.
My first reaction was not to have the chemo but my husband and kids broke down and wanted me to try. I will do as they say and have the other two chemo's, I did note that the prof said......... if it has grown.... he didn't say shrunk!! If it has grown I might have a bronchoscopy then handed to the lung team, my mind tells me not to put my family through all that, but I can't trust my reactions at the moment.
It is best that I take one day at a time, there is no way of knowing how this will progress, I have read some horror stories.......... I want quality of life not quantity.
It is nice that you and your friends have me in your thoughts, and the rest of the ladies on here.
I have everything crossed for you Eileen, keep well!!
My email is biff-o56@hotmail.co.uk so if you want to use that I can send you my Mobile number and we can text or chat. Its up to you anyway as I know your full of all sorts at the moment going through your mind. But in future if your in Hospital its nice to get texts from people as its a long day.
Unlike you lot I haven't got the night owl syndrome! Glad to hear chemo went ahead as planned Eileen, I know you wanted to wait an extra week but now as least your a week ahead and one week nearer being finished. Hopefully you will manage to avoid admission this time.
Dot I'm glad to hear you sounding better, time has a great way of making the unthinkable bearable, even so you sound as if your getting there quickly! I fully understand your comments about quality and not quantity, but be careful when making treatment choices as sometimes these do affect quality. Both chemo and radiotherapy can be used for symptom refief so please don't just discount them on grounds of quantity. Take my case for example - without the chemo I would rapidly end up wheelchair bound with little arm strength, as I don't find chemo symptoms difficult it equals quality for me. This is your first chemo and after a week or two you will be better positioned to judge how it affects you, then after you've had all 3 and the scans you need to be prepared to ask the tough questions (if there needed which I hope there not) of the consultant. Is the proffessor you talk about an oncologist? Sorry but I do get a tad confused! I'm used to everything going through my oncologist and even if (?when) i develop secondaries I woun't be expecting to be referred to a different specialist, it still cancer and he's the expert on cancer so I just don't see what throwing another consultant into the mix can bring - apart from confusion and even more communication difficulties! sorry very negative about multiple consultants but that comes from years of experience!!!!!
I wouldn't put to much store byt the fact he said nothing about it shrinking, prior to this chemo my Onc was very negative - no hope negative- actually dragged me down for a least 2 hours! When I saw him last Fri he was back to his normal self. The only thing that was different was that I'd had chemo and he could see that my movement was better hence the chemo was working. The negativity was purely in case it didn't and this may be the same in your case. At this point they have no way of knowing if its doing anything which is what the scan is all about.
Glad you happy with your wig. I have one from last time but never wore it, while it was comfortable when I had hair I found it very uncomfortable without! I'm afraid I prefer bald but usually give in and wear bandama's when I'm out! Amazing how different you get treated in shops!!!!!!!!
Try and keep your spirits up, good luck to all.
If you think I can help in any other way my e-mail is jacinta.oneill@virgin.net. I am also happy to give my mobile for texts but not overley keen on talking Strange But I hate talking on telephones!!!!
Eileen hope you are ok, thought about you all day!!
Jackie the prof is an oncologist, but his work is in the ovarian field, the hospital I go to only treats cancer, the prof said that there is another chemo for lung cancer and he would speak with the team to see how to progress once I have the ctscan. We have two hospitals in my area both of which deal with cancer only, my local hospital has a dedicated cancer wing, but I wasn't allowed to be dealt with by them as they can't deal with certain cancers. They are widely respected, erm well they were to me once lol.
I will just take it day by day and not discount anything until I have fully researched my options. I still have this ache in the right side of my rib cage and back, no wheezes or groans, which keeps my mind zoned in, I try to think it has to be the chemo but of course I think it could be something else. The prof pressed my side and rib cage and more or less dismissed it, sent me for bloods and urine test, all were clear. It feels as though I am wearing my bra too tight lol.
I am taking paracetamol and tramadol, that is what they gave me when I had my op.
Paranoia was never one of my things, but it looks like it visits me regularly now.
