Welcome to the forum Vekaria although I'm sorry for the reason you've joined us.

It sounds like a very difficult situation to be in but you're not alone as many of our members have also been diagnosed with endometrial hyperplasia with atypia and hopefully some of them will share their thoughts and advice with you soon.

If you'd like to find out more about this condition and discuss your potential treatment with one of our cancer nurses, do give them a call on 0808 800 4040. Their phone lines are Monday - Friday (except bank holidays) between 9a.m - 5p.m.

Kind regards,

Steph, Cancer Chat Moderator

So sorry no advice but I'm in a similar position. Desperately hoping to avoid a hysterectomy. I've had 2 biopsies and both show atypical cells, I'm on provera at the moment. 

Hi, sorry to hear your going through this. 

Unfortuntely I had to have a full hysterectomy removal of womb, tubes and ovaries in January. I am in the menopause state now and its horrible.  But it was the best route for me and it was something that had to be done to avoid any future issues. 

Sorry dont have any further information or help for you. I think it all depends on the cells and how they changing and your age. Maybe the medication route may work for you and they normalise to avoid hysterectomy, but they told me that most that are my age and show this the best option is full hysterectomy. 

Wishing you all the best of luck and hope the medication helps....

Hi, I am waiting for a hysteroscopy but they are keeping me waiting ages. They have said they think I've got Endometrial Hyperplasia but need to see what biopsy says.

is a hysteroscopy painful? I read some really bad reports online . I don't know whether local anaesthetic will be enough pain relief.

also I think I would opt for hysterectomy given the chance but I am wondering how it will make me feel.

what symptoms are you experiencing since going into menopause? Are you finding it difficult?

hope you don't mind me asking.

thank-you. Xx

Hi Regina

Sorry to hear about your situation 

Definitely wait and see what the hysteroscopy results reveal, whether it's complex hyperplasia or atypical hyperplasia. Because the complex version you can have a coil fitted or medication to help and avoid the whole hysterectomy process. Atypical is where the cells can develop to cancer and the most common treatment is full hysterectomy. 

Hysteroscopy procedure varies person to person. But if they doing s biopsy I would recommend doing it under sedation or general anaesthesia. I think local anaesthetic may also work, because you won't see the pain in that are when they carry out the procedures.

My first one I had was done with nothing and I fainted and it was very painful and uncomfortable. The second one was done under generally anaesthesia as a day patient. It helps to remain calm and positive. 

Life after Hysterectomy and in menopause is challenging. Every month there are diff symptoms, from hot flushes, low mood, depression sensitive to stress aches and pains etc. But they are manageable to an extent with putting things in place for yourself to help ease the edge of these symptoms.. it's a big change to the body and whilst it adjusts and get use to the no hormone anymore it takes time. 

I am on hormone treatment by way of patches which I change once a qeek, it took a few weeks to adjust to the side effects but they were mild. They helped control my hot flushes for sure and also lifted my mood. 

Currently I'm suffering from lack of focus concentration and have really low mood. 

I hope this answers your questions any thing else you wish to ask please feel free to drop me a message. 

Wishing you all the best in your journey

Hi Vekaria,

thank-you so much for getting back to me.

Your advice is a great help.

it's good to talk to someone who has been through this situation already and can offer advice.

I will ask for a general anaesthetic with the hysteroscopy. 
I will just have to wait for the appointment to come through but with the covid backlogs there is a long wait. 

I am so sorry to hear about your symptoms with the hysterectomy. 
People make out hysterectomy is just a routine operation but they don't realise that it is a huge thing with lasting problems to have to deal with afterwards .

I am only 44 so I hope I don't have to have one, but I will have it done obviously if needs be and will just have to hope for the best. 

sending you blessings

good luck with everything and thanks again for the reply. 

Your very welcome!

Your right it is good to talk to someone who has been through it. It helps to have real life experience information. 

I was 42 when I had mine in January this year. The hysterectomy procedure is small and recovery is usually 4 - 6 weeks. The first 7 days are the hardest but after that it gets better. But your right no one, even the professional tell you about the menopause symptoms that you wake up to the next day. Your body changes over night and the after effects last for a year before you can even begin to get on top of things. 

I hope you get your hystereoscopy procedure appt soon, covid has alot to answer for lol. 

Take care 

Hi again,

thanks for your reply.

After January next year it will be a year for you since your op.... are you expecting things to be different next year? Do the hormones settle down and aches, pains and low mood etc improve? I hope so. If at least you know there's better times ahead at least that's an encouraging sign. 
I would hate to think I'd got to have a hysterectomy and it was going to be troublesome for years ahead. 
 

Can I just ask, with regards to the hyperplasia with atyipia that you had, what kind of symptoms were you getting?

I can't say I'm getting much bleeding between periods necessarily but I am definitely bloated a lot, and also there's like a heaviness and lumpyness to my womb area.  I've also been getting some mild pains and mild nausea in other parts of my abdomen like higher up and on the left side. Sometimes it even feels like my chest and heart are tight, and I definitely can't where tight fitting jeans as it pains my pelvic region to have a tight band across there. 

My periods are also quite a bit heavier and longer lasting than normal but nothing that isn't manageable. 
 

Thank-you. 

Hey, 

Yes it will be a year in Jan 2022, to be honest every women is different to reaction to menopause. Some will suffer alot other not so much and some in between that can be managed. 

I don't know what next year will be like but I'm hopeful that the hormone patches I have will help normalise things. I'm on the overweight side but I think if i loose weight some of the aches pains and general mood can be managed better. Exercise is what helps with low mood and depressive symptoms but my issue is I feel so demotivated right now that this is a work in progress for me. Diet is another thing eating healthy and change as needed is also going to help..I've got a pretty good diet but it's always a case of tweaking things. I am currently taking each month at a time

Historically I have always had problematic periods, from never coming to coming to often to heavy bleeds and long bleeds too. My issues were referred to gynaecologist back in 2019 after I insisted the drs do something for the prolonged periods I was getting. Some cycles I would bleed really heavy for 8 days and the whole thing could last to 10/12 days. I was eventually not turning on every 4 weeks but sometimes 5/6 weeks. My bleeding was very clumpy sometimes.. I had lower back pain from the time of month and thighs would hurt so much. But other than that didn't have much other symptoms you read about with this condition. Which is why it was shock for me. 

I had hystereocopy in June 2020 and that's when the condition became apparent. They said they would retest in two months. Late Nov 2020 I had hystereocopy again and it showed the cells had progressed and likely to would cause cancer and best to have full hysterectomy. They called me mid Dec to book me in but I just needed some time to get my head around it and eventually it was booked on mid Jan 2021. 

Hi,

Yes I understand when you can feel lacking in motivation. It can be hard to pick yourself up when you've been through a tough time. You can be left exhausted mentally and psychologically never mind about physically!

I really hope 2022 will be a better year for you. 
 

Wishing you all the best and hope you have a nice Christmas.

I might send you an update on here next year , of how things are going if you don't mind.

Thanks for your time on here, it has been appreciated.

Take care,

best wishes.