Very scared waiting for a biopsy

Hi everyone, 

 

I found a lump in my right breast which made me think "oh what's that!!!". I panicked, called the GP and she said it's probably something benign, likely a cyst. She said she can't confirm because she doesn't have ultrasound so I will be sent to the breast clinic for further investigation. I went today and they found the lump, said it could be a cyst so did an ultrasound. I could tell on the ultrasound it wasn't a cyst, which they confirmed that there is a mass that they need to biopsy. They also wanted to be thorough and do a mammogram first. This point I had a panic attack because why were they doing a mammogram unless it was suspect. Had the biopsy which was fine. The doctor said we don't know what the mass is, it could be benign or it could be cancer. He said if I knew it was cancer I'd tell you right now. From the images it looks like 1 lump. So I panicked more. He said, I'll see you in a week to discuss the findings. I said should I bring someone? He said yes. He said don't worry about it until you know what you're dealing with. 
 

The experience really shook me and now I have an anxious week wait to see what it is. I can't help but worry. I'm 34 with two young kids. I'm so terrified.

 

I was looking for reassurance from them but I got none. It was serious. I'm finding it hard to concentrate, I haven't eaten much at all, I'm supposed to be working but can't focus. 
 

How do you cope waiting for your results? Especially when they won't give anything away? 

  • So I went to see them yesterday. 
    I am reeling a bit because I genuinely didn't think that I could possibly get it. I've just turned 50 but I'm fit, I run half marathons. My weight is good, my diet is good. I don't smoke. 
     

    but I have HER2 invasive breast cancer. There are 2 lumps in my breast but hopefully it hasn't spread. I'm waiting for an appointment for a sentinel biopsy and an MRI because I have dense breasts so they can't see it very well. 
     

    they say I need 6 months of chemo, followed by a mascetomy, probably followed by radiation. But it is treatable. 
     

    im not sure about the consultant. She is really harsh. I asked her if it can be cured and she said 'it's not for me to say, I'm the surgeon' but when I google I found a 99% recovery rate. 
     

    she also says I will have to shield throughout chemo and she recommends that my husband doesn't work and that my daughter doesn't go to school. She has her GCSEs this year. Or she said we can live apart! 
     

    I think I need to get some more advice from the oncologist as this is too much to handle. 

  • Much better news. I spoke with the oncology nurse today. She says they are not advising shielding just generally being aware/hand washing etc

     

    she has also booked my sentinel surgery for Tuesday with pre op today and MRI next Friday. 
     

    I feel so much better now it's starting to happen

  •  

    HI Renpen,

    I am so glad to hear that things have started to move for you at last. I hope that all goes well for you on Friday. We always feel better once we know our path ahead.

    It's good to hear that you don't need to shield after all.

    Please keep in touch.

    Kind regards,

    Jolamine xx

  • Renpen, sorry to hear your diagnosis but great to hear that it can be sorted. It's good things are starting soon. The surgeon sounds a bit unsympathetic but it's great you felt better after talking to oncology. I wish you all the best in your treatment! You're strong, you're fit, this is treatable and you will get through it xxx

  • I'm sorry you didn't get the result you were hoping for but you sound amazingly positive which is brilliant. Mine was HER2, as well. I felt really well after all my treatments, I'd lost a bit of weight through it so looked better as well. Things have gone downhill a bit now I'm on hormone suppressants, if you're put on them be aware of side effects and don't put up with discomfort, keep going back until they get the best one for you. With lockdown as well I've put on more weight, I have aches and pains in muscles and joints and then there's fatigue. None of it is unbearable but I'm just disappointed to have lost that feel good that I had, I felt younger than my years but now feel older. I don't want to depress you only to warn you to not to settle for what you're given if it's not right for you.  Very best wishes for your journey. Xxx