Hi Babs,

Ah glad to hear the antihistamines worked, it makes a big difference esp when you lying in bed and cant move for the pain.

Good on you for going hedgehog!  I felt so much better after shaving my head, i had to do another trim this week and going all spikey and messy with gaps lol!  Of course i do still freak myself out when looking in the mirror, esp in the morning.  Cant wait to look myself again.

I have a cold and chesty cough so feel really rough.  I'm keeping an eye on my temp as went up to 37.3 last night so made me worry. I'm feeling better today just sound like a smoke 40 a day!  never smoked in my life.  My pre-assessment is on wednesday so hope it clears by then as dont want to miss out on chemo next week. 

I have one wig, i went for a crop bob.  Just before chemo i cut my hair and donated it so thought i would try something shorter.  i've worn it a couple of times just for a few hours as it takes a bit of getting used to and can be quite tight on my head.  I'm convinced i've got an odd shape head lol!  I've worn my head scarves a few times, well just normal scaves tied up. My friend bought me a book on how to tie them in 30 different ways.  I was going to practice this weekend but alas rather not, trying not to move so dont cough my lungs out.

Hope you are doing well otherwise and having a relaxing weekend.

xx

Oh Dear Mich .. Sounds like you may get your treatment put back if you are so chesty as Chemo will make it worse and raise your temp..  My normal temp fund from 37.2 to 37.5 . I ended up in hospital with a temp of 38.3 which lasted a few hours .. You may need some antibiotics ASAP so I would contact them on Monday and let them know how you are feeling .. Don't leave it . You shouldn't suffer .

Yes I am a hedgehog now but I can't tell anyone how soothing and how good it feels, unless you done it you don't appreciate it do you know ..

I hope you feel better soon 

Take care  . Hugs from me xxx

Hey Babs,

Thanks for your message, I'm feeling much better well with the chesty cough, just zombiefied today!  I went to the docs on Tuesday with hubby as he had a horrible cough too and we both had chest infections to on anti biotics for a week.  Today is the last day for taking them.  I had my pre-assessment on Wednesday and quite surprised they came back fine for my to have chemo on Friday!  The nurse said its fine as the antibiotics would of been in my system for 72 hours before chemo so doing its thing.  I really thought it would be postponed.  They did say if i felt rough not to come in but was doing much better by friday so i had taxol / carbo, yup double whammy!  Steriods kept me going this weekend but now i feel like a zombie and cotton wool for brains.  So taking it easy indoors today.  Probably did a tad too much this weekend.  so glad to be over the worst of it and now 5 more treatments left of this, cant wait!  Then onto the next step.....

How you doing today?

Hugs xx

How you doing [@WickedAngel]‍ 

Are you doing ok after your first chemo?  First is always the worst as often we are anxious! I ended up in A&E as couldn't keep anything down then they upped my anti sickness meds and thankfully all ok after that.  Tad bit of trial and error eh as they dont know how your body is going to react.

Thinkin of you 

xx

Hi again 

My first one I had antibiotics with temp but not sure where the infection was which was strange  . Glad to hear they have started working for you . 

I started my second Chemo on 28th and this time started with a different anti sickness 'Emmend' much better to stop the nausea but this time having terrible acid reflux and my gums have started to recede in 3 places  .. I have appt tomorrow with the dentist so really hope it is reversible.  My weekend has been awful with feeling really washed out, emotional, terrible acid reflux pain and feeling quite jittery inside.. So slept for most of it    However PIC flush day today and started feeling slightly better and hoping it starts improving... Just one more of the strong doses again on 17th so can't wait until they are behind me ...

It's really difficult explaining to people who have not experienced this treatment or symptoms so chatting on here does help me knowing that you know exactly what I'm talking about and there are others feeling zombified too .

Not sure what taxol is but if it makes you feel good I want some ..

Good luck with your next 5 . It sounds great to be nearing the end 

Take care xxx

Hey Babs,

Yeah sure does knock the stuffing out of you and so nice when you feel relatively normal again.  My anti sickness is Akynzeo and have been fine on this one.  The drugs i am on now are so much better than the first lot, i hardly have any symtoms (err touch wood).  The taxol gives me acid reflux and nose bleeds but not too major and then every 3rd week they combine it with carboplatin that makes me a bit spacey but managed ok this week after Friday.  Yeah i find myself quite emotional once the steroids have worn off.  I'm like a duracel bunny and then next minute no energy and balling my eyes out haha!  We've all gone through it.

Today i went for a walk around the harbour and coffee, was good to get out but rather tired now.  I have an appointment with oncologist tomorrow to discuss my last scan and then being zapped again on Friday. 

Hope you are managing being zombified, most evenings i feel like a right space cadet!

Hugs

xx

Hi . 

Just read what you put about taxol and I have that after this one.. I am already having acid reflux and now on omeprazole for that as it was awful . Just hope it stops the acid reflux tho as only started it 2 days ago... I was hoping the taxol was going to be a bit better . 

I am still having the bone pain from the filgrastim and having to take regular analgesics especially in the afternoon but seems to come on a week after the chemo so looks like my bone marrow is working overtime..

I am definitely getting used to being zombified so I suppose I will have to put up with it a bit longer . Do you have this one every week ?

I see my Oncologist next week too just hope my White cells are up do I don't get delayed 

If you having nose bleeds are you anaemic ?

Big hugs from me and best wishes with your treatment 

xx

Hi,

It's nice to find a recent forum from other ladies dealing with triple negative. I am only 29 and had 1 chemo session so far. I have been extremely scared as I am suffering with back ache and waiting on results from a CT scan. Did anybody else kind of feel like they weren't in their own body after their chemo drugs. Like I'm there but I'm not really there. 

Xx

You are describing exactly how the majority feel, you have brain fog and feel a bit zombified for a short while until the effects wear off and then it starts again on the next session..  Its nothing to worry about and try to relax ..

I had terrible back pains and couldn't understand what was happening to me until I was told it was the filgrastim injection to boost your white cells . This makes your bone marrow work harder to reace the white cells and it can give you really bad back pain in your bones .  I take Co cidamol / codeine and brufen for this which does relieve it and also a hot weety bag or I sit with my back on the radiator . It does help . I wonder if this is the pain you may be experiencing as its not nice . 

I did have cancer at 32 so I understand how frightened you must be but I am 63 now so try and stay positive it is the best medicine 

If I can help in anyway please let me know . Chemo is not nice but we can all get through this together with each others support and experience 

I have acid reflux too . I have started omeprazole for this which has helped no end 

Big hugs from me 

xxxxx

I havnt had those injections I don't think and the back pain started before I was diagnosed. Yes it is a scary time but it is nice to hear of people who have got through this.