Hi Clou

I've just joined today.

I am in a similar position and my mind is going into overdrive. I am waiting on a chest scan and biopsy as they've discovered a 5cm lump on my kidney.

I am thinking the worst and constantly teary.

The worst is the waiting. I hope you're ok 

Sarah xx

Hi Clou, welcome!

I feel for you so much as my right mass was also found accidentally after a kidney infection. I had an ultrasound to check my kidneys were working ok and they found a 6 x 8cm mass they said.

i couldn't sleep and was a state and really got myself into such a worry, googling everything and of course if you type in google a kidney lump all that came up was cancer.

i went to my appointment with a urologist and unfortunately it was cancer. At 26 years of age and just before my birthday I thought this has to be some horrid dream. I've wasted my life on anxiety and worry and my heart was broken. When you hear you have cancer you think that's it. You think it's a death sentence. But I can assure you it is not.

they sent me for a CT scan with ink and omg yes it really does feel like you've wet yourself!! 
I had a biopsy after that as it didn't look like it spread but they needed to see what type of cancer it was looking like as one type meant they'd have to remove part of my bladder too.

it ended up not being the one where they remove the bladder also and 

just before Christmas I had my kidney removed on my right side they left the adrenal gland and urethral tubes.

it turned out to be over 10cm and was confirmed at my consultant appointment last week that it is 100% cancer and it's a rare genetic type. So basically I was born to have it at some point!

i am telling you this not to scare you but to let you know what could happen as I couldn't find anything anywhere.

i want you to know that if it is infact cancerous, you've had a CT scan which shows no spreading and they can just remove part of your kidney or all your kidney and you'll be okay.

even if it turns out to be the worst you WILL be okay and I promise you that.

the fact they don't know what it is is a good sign because they can usually tell straight up if it's cancerous looking.

so here's to hoping it's benign and you don't have to worry as much!

but as I said if it's not, you'll be fine and pIease do let us know what happens

sending all my love and positive thoughts

amber x

Hi Sarah,

I hope you get results soon. Have you an apt date for them? I got a letter through the post with a telephone call on. I dont know what they'll do after this ultrasound. I'm still waiting for a letter. I think reception is getting sick of me asking for post now haha. 

It's tough; I dont know how to make the wait easier. It's all well and good when people say keep busy...not that easy mate lol 

Xx

Hi Amber,

Thank you for your reply. Yes, I'm hoping for some good news. I'm in a lot of pain right now. I have 3 boys aged 11, 4 and 3 and a husband who needs waiting on...cant afford to be I'll with that tribe! Haha.

All I know so far is it's a solid mass, soft tissue so it's not made of fluid or blood so the nurse said. Well, at least I'm not bleeding. 

A million things keep running round my head but you're right, if theyve found it, they'll do something :) 

Fingers crossed. I'm 31 so in the same boat as you, younger than the average. I've had kidney problems since the age of 17. Always told from then I'll be a stone former. It's nice to know I'm good at something ;)

Hope you're feeling better after your op. Do you have to keep going back for repeat tests at all?

Clou x

Hi Clou

No appointments yet. I've phoned the urologist to chase up (he will be sick of me). 

if it's cancer and it's just in my kidney I can cope. My biggest fear is it has spread and that's what worrying me.

I am just up and made myself a coffee and going to attempt a half day at work doing some admin.

i am just so frightened. I have a wonderful husband who I love so much and I can't bear the thought of leaving him. We got married 6 months ago. 
 

im here for you xxx

Amber thank you for this post 

It has given me some light in a world of darkness xx

Hi Sarah,

Same! Coffee, work, back at 1 haha. 

How long have you been waiting now? I'm wondering how long I should leave it before I chase them. I sound like a right badgerer (not a word but hey ho) but I need to know what's going on more than anything.

Yes, if it's cancer, fine, just get it out! :) 

Love n hugs xx

I've been told by the urologist I should have the scan and biopsy within 2 weeks.

I found out about the lump on Tuesday.

My husband is away for a week from today and I'm an emotional wreck wondering how I will cope.

My poor parents are upset too and we are all praying. 
 

Have you found that you're utterly exhausted? Since the blood in my urine I was exhausted for about 5 days. Since Tuesday I've been sleeping loads. I am hoping it's the stress!

I would start chasing. Just even for piece of mind.

resh assured they are on the case for you! Xxx

I'm tired too. I went to asda yesterday and couldn't get round properly. Practically limped back to the car. I feel like I need to wee all the time too but I'm not sore with it. Just annoying. The pain in in my right side. Sometimes in my lower abdomin too. That's when I start thinking, oh god, I hope my ovaries are ok too! 

It's a nightmare isnt it. 

Do you have someone to go with you if your apt comes through while your husband is away? Mine is away 27th for a week. I bet mine comes through then. Sods law. I will have to go on my own because no one else around here in terms of family. 

Deep breathes! Cup of tea...might see us both right for 5 mins at least :)

Xx

Yes my Mum - I just feel bad because she's so upset too.

I have to keep positive - although I've cried every day since Tuesday.

We just need to be strong and know that the wheels are in motion to get to the bottom of whatever this is!!!

xxx