Hi Bethanyannie,

I imagine that your care team want to check with cardiology that your heart is strong enough to undergo treatment.

I am sorry to hear about your seizures and fainting, alongside all of your other complaints. I know how difficult it is to diagnose the cause of such attacks. I have recently had a brain scan to determine wheter the seizures I have been taking are the result of medication or of something more untoward. I've not had any results yet, but know the worry only too well.

How soon is your appointment with cardiology? Just keep reminding yourself that what you have is benign. Here's hoping that your appointment with dermatology comes through quickly and, you can beat that infection.

Kind regards,

Jolamine xx

I'm sorry you're going through so much, mystery symptoms are so worrying. I saw occupational therapy today and symptomatic mysteries were something we discussed.

I'm seeing cardiology on the 30th of this month, the hospital has practically arranged to see me in every department. 

Thank you for reminding me that what I have is benign and with help can be treated, I need to be reminded sometimes. I really hope you can get sorted soon too and your results come through quickly xx

Hi Bethanyannie,

I'm glad to hear that you have an appointment with cardiology at the end of the month. It may not seem like it at the moment, but it sounds as if your consultant is being thorough by sending you to all of the different departments. You must be happy about that, when you've had these mystery symptoms for so long.

Here's hoping that you get some answers soon.

Kind regards,

Jolamine xx

My goodness it's been 2 years! Here's the update:

Cardiology diagnosed me with POTS Syndrome, it's not life threatening and since my diagnoses I've only had five episodes!

As for the breast trouble, it's gotten worse and I'm very worried. Dermatology was useless, just gave me lotions that haven't worked and discharged me. Finally gone back to my Dr who put me on antibiotics because the swelling and lesions are so painful, it's been a week and the antibiotics haven't even touched the infection, going back Friday to see what happens next.

Hi Bethanyanne,

Thank you for the update. I am glad to hear that cardiology managed to diagnose you with Pots Syndrome and not something more sinister. Have they put you on to any medication to try and regulate your blood pressure? - It sounds as if they might have when you've only had 5 episodes since your diagnosis.

I am so sorry to hear that you are still struggling with your breast problem and that Dermatology was no help to you. Have the antibiotics made any difference by now? I sincerely hope that your GP canhelp when you return on Friday. Do I take it that you have had no surgery if your breasts are still infected, and is this still the plan?

Please let us know how you get on and, remember that we are always here for you. 

Kind regards,

Jolamine xx