Hi Carrie, 

Try not to Google and look this up constantly as it will only end in more worry. It's a difficult and scary experience, not one I'll forget. Looking back I think most of the worry for me came from letting my mind race ahead of what was actually happening at the time.

When I seen the first ENT privately, he almost immediately wrote it off, because she never had unexplained weight loss, excessive night sweats, etc. He said this is probably a node from a wee viral infection that may be swollen for months, that in an otherwise well child, a node, even in that area is not something that concerned him. He said something as simple as a fall on roller skates, we small bump to the head etc can cause a node to pop up.
Obviously being worried I was sure this diagnoses was rushed and I needed a second opinion fast. So when the NHS appointment dropped the first ENT also said in their opinion it was just a reactive node that would take sometime to come down, maybe months. I was still not convinced so asked the ENT for another opinion there and then, she got the most senior specialist to pop in who said the same thing and said he would arrange an ultrasound just to "put my mind at ease" and "put it to bed".

We waited for the scan a few weeks and that was a grim wait, but we went and they couldn't give use results right away, but I asked their opinion and again the radiologist said it looked ok to him but he needed to wait for the the main consultant to look and write us back. The letter never came in within a week so I called snd the specialist said the letter was on its way and that it was good news , I still didn't believe it but a few days later we got the letter saying that they believe this to be a reactive node and it will reduce over the next few months.

It took several weeks for this whole process and I know what your going through, it's really scary. So what I'd say is focus on the positive outcome, stay away from Google as it only made me worse, reading medical journals etc. Trust the process, the doctors do know what they are doing.

If your daughter is otherwise well, with no major symptoms apart from this swelling I would take some comfort from my experience and see that it does happen and in all fairness not one of the doctors apart from my GP were too worried, they said it's pretty common after infections or something that's happened way before for a child to have node that is stubborn and won't settle down, that in some cases may never fully reduce and be sort of scarred without any effect other than it's being a little larger than normal.
 

I hope your get answers soon and that everything is ok.

all the best :)

D

Hi Ahmad,

It was swollen for months and never really started to reduce noticeably for a good while, but it never got larger in that time also.

if you read my reply to Carrie below you will see I've detailed the whole process :)

I hope all is well.

D