Mich,  I don’t know you but I know enough about cancer to know it’s a shock and feels ‘surreal’ for a long time. Like you I don’t feel ill at all. It’s crazy. 

Just wanted  to send yoy love/positive vibes and to know that within this diagnosis there’s room to rage against your lot. That’s normal and acceptable. Talk about it/ write about it. Get it out. 

Go well. This forum is great for hearing from others in a similar position. 

Big love, Kebb x 

Hey Linda

I had the same with my pre assessments so early in the morn at 8am.  I drink loads before i go to bed, have water and squash when i wake up, do the flappy arms chicken dance and they still cant get to my veins!  Last week my assessment was later at 1020 and voila, she found it.  She did say it was tiny but no probs.

Hope the side affects are not too bad for you and you are relaxing this weekend.  Deff a day for recharging the batteries indoors eh!

Hey Davia, glad to hear you are managing ok .  How are the exercises going? Are you still going for blood tests?

Thanks ladies, i've heard manuka is good for you.  Going to order some now :)  My mouth is feeling a lot better the past couple of days.  Stll bit of a nose bleed.

Ah thanks Davia I'll take a read.  Last week was rough, i felt so low but numb couldn't get past the foggy wall didn't want to talk, was so zombie and blue.  I was convinced my hubby wanted  to leave me and the cancer might as well reoccur now and get it over and done with.  so dont want to have those horrible feelings again this week. So taking one step at a time. 

Claire i'm doing the utube mediation videos too they help me relax and sleep, think i should do some during the day when i feel my mood changing lol!

How you feeling now Claire, hope you not in too much pain. 

Sue are you near Leigh on Sea?  I see there is a charity called The Bennos Boob Foundation and they do charity events and evenings raising funds for triple negative research. I found them on facebook, they are on instagram too and located in Essex. 

Happy Sunday vibes xxx

Hey Kebb

I know, sure does mess with your head.  I was numb for ages when i was first diagnosed, kinda of like an out of body experience.  Now i'm on weekly taxol im feeling quite raw with the steroids high and low.  I'm not a moody person, im usually on an even keel so quite weird to be so low and all of the place.

But hey we are warriors and this is a major thing we are going through physicaly and mentally so there will be ups and downs.  I'm feeling ok this weekend and have identified with it so will go for a walk, rant, through my toys, or meditate tomorrow if i feel the blues fit in.

How are you doing?  Are you managing with treatment.  

Big hugs

xxx

Hi Mich,

I live in Leigh on Sea, small world! I'll look up the charity online. I too am feeling morbid and sorry for myself. I've worked myself up about the results the surgeon is giving me on Friday. I keep thinking that the cancer has spread and keep imagining lumps in other parts of my body. My husband doesn't understand and tells me I'm being stupid.

I hope you start feeling brighter soon, I think we all have bad days. Stay strong, we will fight this

Love and hugs,

Sue xxx

Haha how spooky eh!  Seems like a lovely lady that has set up this charity from when she was diagnosed a few years ago. 

Are you having another scan on Friday?  Is that when they say the margins are clear.  I know its horrible, i was convinced it was in my bones last week as my rib cage was so sore on the left! No idea why, it is feeling a bit better this week. 

I know my husband doesn't like to hear when i'm morbid, he doesn't know what to say.  Its hard on them as they just want to keep postivie and keep things going and a sense or normality. 

Thanks doing ok today, going to the cinema in a mo to watch Bad Boys lol!

Hugs all around xxx

Hi Mich,

Enjoy the film. I'm not sure if I'm having a scan on Friday, I didn't think of that. The removed nodes get examined and I'm not too sure how they tell if it's spread. I feel frightened all the time and it's not a good feeling. I'll snap out of it.

Enjoy the  popcorn

XXX

Hi Mich, I felt really emotional on carbo/ pax and I to was convinced it had spread, I had and still have a tender area just left of sternum, I know now it isn't anything as had pet scan, and since finishing chemo, I've had aches in leg and arms, I read this is common after chemo, wished they told us this beforehand, I still sit here and get little niggles like, maybe they didn't scan that area or maybe it didn't pick it up, my lovely hubby just looks at me and says, no, you have had so many scans you glow in the dark lol I do think psx/carbo does make you feel more emotional, I sometimes just sat there with tears streaming out of my eyes for no reason, I'd say to my hubby, ignore them, there just doing it for no reason lol its such a very hard emotional road but we will and can do this xxx

I'm going on my look good feel good tomorrow, take my mind of surgery on 25th

Sue I hope your results are posative, let us know how you get on, xxx

Keep well ladies xxx

I think it must be completely normal to feel all these things - that it must have spread, that every niggle or pain is cancer. 
 

I saw my surgeon today, there was no cancer in any of the tissue they took during the surgery, clear margins, I'm officially cancer free. I felt hugely relieved at the time and of course I'm happy but there's also still a niggling doubt/worry and I'm not sure that will ever go away.

The doctors here said they would still go ahead with radiation as it was triple negative and had spread to a lymph node but I'll have to see what the hospital says.

Sue they will just tell you based on examining the tissue removed. I've got everything crossed for you!

Davia, how was your look good feel good?

Mich, how was the film? Is that a remake?

Lindy how are you?

Love to all x

Hi Claire,

I am so happy for you, it will be such a relief for you and you're family. The worry about reacurrance will never go away but we will all learn to live with it.

I'm terrified about my appointment with the Surgeon on Friday but at least i'll know one way or the other. I'm having 3 or 4 weeks of radiotheraphy whatever the outcome.

Love to everyone

Sue xxx

Hi Claire, that's great news, really happy for you xxx

Sue we are all anxious about results, it's totally understandable, let us know how you get on, will be thinking of you, xxx

Lindy luu 

How is the paxol going? I hope its bei g kind to you xx

Mich, hope hubby is recovering well and your mouth is feeling better with the cream, xxx

I went to my, look good feel better course yesterday, it was such a laugh, and you get so much, they give you a black bag full of everything you need, I even got a perfume. I learned a few tricks to, you ladies will enjoy it when you go :)

I'm a bit concerned as I've just started a cold and my surgery is next Tuesday, I will be so anxious if they postpone it, I've waited four & half weeks and keep worrying it's going to spread, I've upped the vit C, zink, and manuka honey and am gargling with salt water and drinking loads, fingers crossed it clears before next week

Well keep well ladies, xxxx