My intro to the forum

I've just had the best holiday ever with my wife, son and family in Scotland.  We were supposed to be there for two weeks but had to come back after one.  I feel so happy.

About five weeks ago I went to the doctor to get ointment for an eruption of a hair follicle in my right armpit. She was concerned about a deep lump and sent me to the breast clinic to investigate.  I was attended by a lovely team and other than the extremely long waiting room times it was a pleasant experience despite the nervous period between biopsies and report.  Turned out to be a stage 3 melanoma and so I had to be referred across to the skin clinic.  I received very quick attention due to the combined efforts of GP and breast clinic.  They even sorted out by delaying appointments so that I could get away for the first week of my holiday.  As my GP said, my melanoma boat had sailed.  So now having had a few CT scans I am again waiting nervously for the report this Friday.

I do hope for the best possible outcome but am prepared for the worst.  It will probably be something in-between.

So what has changed over the last two months?  I feel that I have become a different person.  I used to be a little bored with life and was a little ignored by friends and relatives.  Suddenly I feel more alive and the sky seems bluer.  However I am now a person with a label.

Maybe I will be different again after Friday.

The holiday was terrific for many reasons, weather, scenery, the place we stayed at, the closeness of family, the food and the wine.  For many hours we sat and watched the harbour seals below.

A complexity of islets
Ranging from the shore
Is diminished by the tide.
Simplicity restored.
Grey seals' slumber ended,
Lumber over rocks then
Slip smoothly into sea.
Slapping and tumbling, my delight.
I spend a half hour thrilling
At their joyful plunging flights before
Returning reluctantly one last time
Up the log jammed lane
To the homely home of Old Suardal..

This will define my outstanding memory of this period and not cancer.

  • Hi David, just read all your posts from the beginning of your journey. I loved your poem and appreciate the anxiety. It does seem there is always something to wait for.. results of scans, dates of surgery, histology results, more test results on and on....Gardening is a great way to pass the time but not on for me yet as it’s going to be a few weeks before I can bend or lift. Walking is wonderful, and each day doing a bit more. I love chatting to people on this forum - feel like we are all soldiers in a battle we didn’t voluntarily sign up for. Mindful meditation helps a lot for me as does cuppa tea made by my husband! I can make my own now, but milking it ! I hope you enjoy your walk and the rest of your day  Caroline  

    I

  • Hi Caroline,

    I know exactly what you mean. Like you I was told not to lift or overuse my arm.  Two weeks from the op I am starting to feel less tired and stronger.  I will milk the attention I am getting for a while longer but please don't tell anybody. I do feel a fraud.

    David

  • Hello Jolamine

    Dare I say it might be the best news.

    The MDT did not discuss me yesterday and put me back to next Monday.  I think this is a good sign as the pathology results must be low risk.

    They looked at 15 nodes and only one was positive. No sign of lateral movement.

    I will have to wait for official confirmation next week and to see if the cancer was encapsulated which would probably mean no radiotherapy.

    All of you here including the people I have responded to have made this a much more bearable journey.

    Thank You

    David

  •  

    Hi David,

    This does sound hopeful. To have only one node out of 15 positive sounds good. Have you any idea why they removed so many when only one is problematic?

    The not so good news is that you have longer to wait for the results. Here's hoping that the cancer is encapsulated and you can avoid the radiotherapy too.

    Having people respond to you and care about you as you're going through all of this does help, doesn't it?

    Stay strong,

    Jolamine

  • Hi Jolamine

    The surgeon can't actually tell how many individual nodes he takes out and certainly not their condition.  So he removes a 'pork fillet' to include my large tumour, being careful not to disturb potential cancer cells. It's the pathology lab does the count and testing. I agreed this method beforehand to avoid further surgery. The damage to the lymphatic system I was assured is not a lot greater and so far I seem okay.  I will keep using the udder cream.

    Hope you are progressing well with work.

    David

  • I’ve apparently got “stuck” in the May bank holidays!! My MDT meet on Monday’s so that hadn’t happened - my SCNS told me yesterday I will definitely find out on Monday 4th June in the profs clinic 

  • I forgot about that too. I think mine will be a day late.  Try phoning up to see if your results are in.  The nurse may give you a clue.

    Positive thoughts Pat

    Regards

    David

  • Well I've now had good talks with my surgeon and today, met my oncologist and can now go public I understand my situation much better and will have to make a choice. The surgeon had removed a 68mm mass but did not take the whole affected area. The oncologist suggests radiotherapy treatment around the boundaries of the excision. This would involve 20 sessions over 4 weeks. This will not prevent the likely recurrance of cancer elsewhere but should clear up the initial area. I will go off and consider all he has said about treatments.

    When I leave the room, I sense Arnie Cancernegger skulking in the darkest of corners. As I close the door behind me, I hear a deep gruff voice whisper "I'll be back!"

  • Well decided on radiotherapy as tumour was larger than expected and not all removed.

    Go for a mould and CT scan Wednesday 27th, then start therapy on 5th July and finish start of August.

  • Glad to hear you have decided. Thats not an easy decision.  Sorry, ive not been on here for a while, needed to get my head in the right place x