I AM A TONGUE CANCER SURVIVOR

My tongue cancer started with a very tiny zyst on the right side of my tongue. I keep it for years until I finally decided  for a biopsy on March  21, 2013 in the Philippines. It was a SQUAMOUS CARCINOMA. My surgeon  had it opened during the biopsy and I left it that  way  until  the wound become bigger.

I only went  for a check up on January 13, 2016 already here in Georgia, USA when I can no longer talk and eat since it was already swealing and become very painful. The pain reached up to my ears as if as a sharp knife being stick to it. It was already stage 4.

On February 12, 2016 - I had  my peg tube installed and on May 12, 2016 - came my 14 hour surgery removing my tongue and voice box. I can no  longer talk since that time.My neck was dissected and  made a hole in the middle of it for my breathing which they call it  a tracheostoma.

They made me a reconstructed tongue out of the soft tissue on my back and I went home after ten days.Unfortunately, on the left side of the reconstructed tongue was not healed. It made a hole in my mouth that connects the chin. Even if it was not yet healed I went to radiation  and Chemo theraphy on July to august, 2016.

Then On December 2016 my surgeon fixed that hole in my mouth that connects the chin. I had my second surgery but it was done 3 times because of the blood clot of the viens around my neck that was affected by the radiation. It was a tedious one because they took some tissues on different parts of my body  and also the skin draft of my both thighs.

Today, January 24, 2018, is exactly  1 year and 24 days since my  second surgery. I am still on my peg tube since my surgeon is still observing the developments  of the inside of my mouth. My jaws and muscles around my neck  are still very stiff until now in spite of my daily jaw and neck exercise.

I am doing fine now and still waiting for God's time for my complete healing. If you have some questions I am very willing to answere it .

Thank  you,

Babie