High grade dyskaryosis?

Hello,

 

i had had a letter saying I have abnormal cells, followed with a letter saying that it is high grade dyskaryosis... Colposcopy a week today and also biopsy? I'm absolutely bricking it! I should have had my first smear 4 years ago so really panicking that it's been like this a while (whilst also kicking myself!)

has anyone else been through the same? X

  • That is a long time, where abouts are you? I've heard in Scotland they take a lot longer for some reason. My smear results and hospital appointment letter came on the same day so hopefully you won't have to long to wait.

    I know it's easier said than done but try not to worry. I'm an awful worrier but high grade dyskarosis just means there ARE some cell changes whereas low grade means there may be. It doesn't mean anything until you get a results letter stating what it is (or isn't!)

    It is so much more common than I would expect for women to get abnormal smears, my sister in law had it in the last year, needed no treatment and her 6 month check up smear was fine. Since finding out about my abnormal smear I have heard about two other friends of friends who have had treatment twice and then they were fine after that. 

    Keep reassuring yourself that there's a lot they can do to help now if there was anything wrong. 

  • Thank you... I think it's more the shock, I wasn't expecting anything and to be honest had forgotten all about it so the letter today hit me.

    I'm in north west England, a friend had a smear a couple of weeks after mine and was told they're running behind and have back logs so results could take longer... I have known people that had had treatment a couple of times and all is now fine but then I also know someone who has had a lot of issues and has had pretty much all her cervix removed and continues having treatment 

    I'm also a big softie and worried it's going to hurt 

  • honestly for me its the waiting for the actual appointmentand results that is the worst. The actual colposcopy really isnt all that bad i didnt think - just a long winded smear of sorts. but as i said, really not the most pleasant of experiences lol but i experienced no pain during or after so that was a bonus - everyones different i suppose. Its been 2 weeks and still no results, hopefully no news is good news! x

  • she said she thinks it is definitly CIN3, and she drew a picture to show me where the cells were - i should imagine my cervix glowed like a light bulb - about 90% of the drawing was bad cells :/ she didnt mention fertility or anything, but she was very serious when explaining everything to me which didnt make me feel any better about the whole situation - if anything i thought it would have been a little more relaxed? she was a nice lady but very sincere which worried me a little. have you had any change in appointments etc? i still havent had my results...

  • So after worrying if have to wait ages for an appointment I got my letter the next day and had my appointment on Thursday (2.6.16) the colposcopy it's self was fine but as expected I got a massive panick on and told my self I couldn't do it, she told me she strongly advised removing it as soon as possible so I gave myself a good talking to and let her do it... It wasn't all that bad just a little stingy when the  anaesthetic was being injected, she took a piece about the size of the end of my thumb and seemed positive she had got it all but then said it'd be likely I'd need more treatment... Just got to wait for results now!

    its really bothering me I can't do everything though I'm in pain if I stand too long and sorry for tmi but I feel as if I'm leaking constantly, like when your waters break in labour,.. Please tell me this won't be like this for weeks! 

    Good luck with your results :)

  • i think everyones different in that respect hun...I was due my usual period 2 days after the procedure so im prob not the best person to comment lol although (tmi sorry!) i use tampons so having to use pads for me personally was horrid! i felt really icky and could feel everything...yuk! paracetemol and ibuprofen should help with the pain, but if its really a lot of bleeding (heavier than a regular period) i think youre supposed to go and get checked out.

    No results yet, yesterday was 2 weeks so i thought id call them and give them a poke, only to be told the lab has a back log so the wait for my result will be more like 7 weeks! so 5 weeks left of waiting! i think thats quite bad - like hey, you might have cancer but sorry we have a backlog?! grrr x

  • 7 weeks! That's no good, they should prioritise samples that looked more like cin3 as I'm guessing it's us guys that'll be worrying more! 

    Im not bleeding at all it really is just like my waters have broke although I totally over did it on Thursday trying to push myself back to fitness so I can get back in the gym... It's killing me not going in there... It's how I deal with stress! So anyway totally over did it walked to work then stayed on my feet for the whole 8 hours ended up with a huge gush of blood and lots of pain, back to my normal clear fluid and dull ache again now thank fully. I hate pads too they're so uncomfortable and I'm having to wear full knickers... I haven't worn full knickers for 5 years added with the heat we've had this week and the lack of gym time I've not been a happy bunny! Haha at least I'm moaning about little things and have stopped planning my funeral... My mind has totally settled down thank god! ️

  • Haha that end bit made me chuckle I seem to be fine now, had the odd bit of spotting which is a)annoying and b)a bit worrying if I actually think about it lol but tbh I've not really been thinking about any of it the last couple of days so thats a plus! Hope you're back to normal asap too!x

  • Hi! Well tomorrow's the big day! Got to be at the hospital for 7am. I've been fine up to now but I'm bricking it now, worried that something will go wrong and I'll never wake up! But then I try and think calmly and it's only a 10 minute procedure and if I have no other option but to have this done to stop the cells getting any worse. Oh and I got my biopsy results back they said I don't have cancer WOOHOO! But it said the cells are CIN3 so I definitely need this procedure done.  

    Have either of you had your results back yet? And how's the bleeding going? I'm dreading having to wear pads as I haven't had a period since before I got pregnant so that's nearly 2 years ago now! 

    Tanya that made me laugh about planning a funeral. I had similar thoughts! Still not going to be completely satisfied until the next smear results come back OK - fingers crossed (looking ahead) but for now I'm happy :-D (except for the hospital bit tomorrow eeekk!)

  • Good luck today I'm sure everything will be fine ️ No results yet but this is week 3 so I'm hoping I hear soon.

    i finally feel ready for the gym, still 'leaking' but it's a lot less and is now blood stained... Less and less each day so fingers crossed I haven't got much longer and I can get back to normal, I just have a horrible feeling that the bleeding will stop then I'll get my results and they won't have got it all and I'll have to go though it all again... The procedure it's self doesn't scare me at all but all this faffing after has done my head in

    Im also absolutely petrified of having sex again so I'm thinking of joining a nunnery

    Let us know how you get on today ️