looking for support dealing with mum having terminal cancer

Hello, I'm new to this but I am looking for support from people who are going through the same thing and thought I would try posting on here. I am 24 and my mother has terminal cancer with only a few months left to live. My mum was diagnosed in march 2014 with oesophageal cancer stage 4 which has spread into her liver. The doctors told us that it was terminal and chemo and radiotherapy was offered but would only buy her sometime. It came as such a shock and I found it very hard to come to terms with as she was so well in herself when she was diagnosed. She went through 3 rounds of chemo which reduced the cancer slightly but mum was very poorly and seemed to have every side effect possible. The cancer grew back very quickly but mum decided she did not want to go through any more chemo with the hope that this would give her better quality of life for the time she has left, we all supported this decision. Since then she has slowly deteriorated and it has been hard to see my fun outgoing mum change so much. She has also had radiotherapy which again reduced the cancer but it grew back so quickly again. She has also had a stent fitted to help her eat which has worked.

I was wondering if anyone else is going through this also. I feel like we have all been on a rollercoaster of a journey so far and it just gets harder the further along we go. At the moment mum struggled to get out and has hardly any energy she has anxiety attacks also. If the doctors are right then she has around 4 months left, I'm just so worried how things will be in these last months. I'm not sure what to expect and I'm worried I won't be able to stay strong for my mum and dad.

I have been to my doctor for stress and anxiety as I have suffered from panic attacks and get a tight chest and my emotions are all over the place. I am currently on a 10 week waiting list for councils, it would be nice if there is anyone who is going through this or has already lost a loved one to cancer that could share their experience with me. I think knowing that others are going through this and have been through it helps as I have felt alone.

Thanks for taking the time to read this and I hope to hear from anyone who would like to share their experience or talk to thanks  :)

  • Hi Jules, thank you so much for taking the time to reply to my post. It's very comforting to know I am not the only one going through this and there are wonderful and kind people like you who are there to listen and generally make me feel i am not alone. How is your husband doing? It's such a cruel illness, I hope he and you are coping ok. Please keep in touch and thanks again. Maria x

  • I lost my mum last year after a nine year battle with brain tumors which turned into cancer I understand how u feel Iv been so angry and sad for so long because I lost ny best friend the only thing I can say to you is that it does get can say is just appreciate every single day you have got left with your mum x

  • Hi Liz

    My sister had terminal cancer for just over a year and died last summer. It is horrible seeing someone you love slowly deteriorating and in pain. Just reassure her and be there for her every step of the way without forgetting to let her be herself and that in turn will help her feel she is keeping her independence. Please utilise any support by other members of your family, nurses, Drs, GPS, Macmillan or Hospice that you are given as you can't do it all yourself or you will end up exhausted and ill.

    Remember to take time for yourself, it feels selfish at times but sometimes you just need to.

    No one should have to go through or see any or their friends and family go through such a horrific illness. Stay strong, laugh lots and keep every moment as a cherished memory.

    I would like to say it gets better but unfortunately time passes and things change. You will always have her by your side watching you and loving you.

    my thoughts are with you and sending you positive hugs to get you through the hard times.

    use this forum as little or as much as you need and remember there are lots of people on here who have been through similar experiences and empathise with you.  

  • Hi Maria

    My hubby ended his journey with cancer, passing away peacefully on 3 January this year. Much missed but wonderful memories. He was my best friend for 43 years and we were married over 37 years.  This forum was a wonderful support for me during his illness and now consider I have a virtual family to add to my own.

    Like you have said, knowing that others are facing difficult times makes you understand that you do not need to be alone as you travel the difficult road with loved ones. Every story is very personal but am always happy to chat if it can make it just the tiniest bit easier. How are you and Mum coping just now?.Jules x

  • Hi Liz, I lost my mum almost 3 years ago to cancer, when mum was diagnosed with cancer she lived roughly 12 days, it was heart breaking to watch someone you love someone so dear to you go, each day we watched and kept by my mum's bedside, trying our best to keep things has normal as possible, it may sound strange but my mum did not deteriate has in losing weight and when mum passed it was as though she was just  sleeping,  my mum went so peacefully, I often hear of cancer patients suffering but we give thanks to God mum didn't go through any of that, I would advice you to get councilling, with me a year after losing mum I had depression and anxiety I was off work for almost a year, I got councilling and also was put on medication which both helped me tremendously, I am still on medication and life ia lot better, able to deal with things a lot better, I do hope you get all the support y, I believe my mum is in a better place and God has called her home, yes I still miss her tremendously but I have learnt now death is something we will all face and life goes on , I understand your hurt but remember you are not alone remember your mum will one day be at peace just hold those precious loving happy memories which no one can take away God comfort you and give you strength to face each day

  • Hi Jules,

    i am sorry I've not replied sooner - I have been rushed off my feet and haven't really 'checked in'. I'm so sorry your husband passed away in January, may god rest his soul and comfort you. Your replies to me are a great comfort.

    My mum is now in the final stages of her lung cancer, we've been told she has a few days, maybe a week. Our hearts are broken but we need to do what we can to make her final days are as comfortable as possible.

    Its a really cruel illness but all we can hope for is peace and calm at the end.

    Big hugs, 

    maria x

     

  • Hi Maria

    Talking as and when you can or would like to is all part of being on the forum. Thank you for your comforting words which really are appreciated.  Its very difficult to focus on anything other than what is happening within your own family at this difficult time. I send virtual hugs to you and wish your Mum  calm and peaceful days during this time and know she will hear your words of comfort and love.  Jules x 

  • Hello , this is such a lonely and personal process to go threw , my advice to you is to enjoy every moment you posserbly cAn with your mom , my mom as terminal stage 4 lung cancer , shocking news for us all in March ... Was told my mom ad 5 to 6 weeks left to live with no treatments .. Devastated is understatement, I took my mom to my house for her final weeks , today 6 months on we are still fighting , each day me n my mom larf ... It's the best medicine.  We know what's to come , and will deal with that when it happens , , I hope this has helped 

  • Hi Liz, I'm so sorry your mom is dealing with such a bad  disease, I'm 13 years of age and my mom was diagnosed with a Tumour in her  bowel and her operation is on the 22nd of December their is a possibility of her not being alive in the next 2 years this is so hard to deal with, in the past 3 years she has had melanoma skin cancer more than 4 times 

  • Reading everyone's posts has helped me to have a good cry and get out some of the emotions that feel stuck inside me since my beloved Mum has been diagnosed with aggressive stage 3 cancer of the breast. Although the body scan hasn't confirmed any spread the consultant has said secondary sites are highly likely, just not visible yet. My mum has been through so much in the past 4 years. She suffered a massive stroke in 2012, completely out of the blue, which took away her right side and most of her speech. She went from a lady who worked full time, ran a house and enjoyed her life to a person trapped in a wheelchair unable to communicate. Just as her and my dad begin to rebuild some sort of life, she is hit with cancer. I've lost all faith in any God, no one deserves what my mum has been through and now the new battle she must face. Why? Is the question that keeps me awake at night. I've just had their first grandchild and my biggest fear is she won't get to see her grow up and my daughter will never remember my amazing mum and her Nanna. I worry so much about how she'll face the chemo in her already weakened state, how my dad will cope as her main carer. They were supposed to be enjoying retirement and that's been snatched away. I have to be the strong oldest child but really I have to bite my tongue to stop myself crying all the time. My heart goes out to everyone on here with a loved one with a terminal diagnosis, I'm terrified at the prospect of it for my mum and I can't help feeling it's an inevitability for her. Lots of love to you all x