Hi all

its bee a while since my last post,not because of any serious issues, but for the first time in a long while I've been enjoying life

i still can't put on weight like I used to, but that's not such a bad thing I suppose and this weight has stabilised, if anything I am managing to put on a couple of pounds a month.

my tastes is still all over the place but I have notice that my tolerance to the more tart foods and sauces is subsiding. I am not at the stage though where I could tuck in to an American burger and taste all the relishes and juices of the meat.

But there is not a lot I can't eat know without the use of liquids to help it down. Still have some issues with lack or should I say less saliva.

chocolate and icing on cakes is still too painfull on my teeth to eat due to the lack of flouride in them, it's just like putting foil on a filling. But I have notice a slight improvement in this to.... But I have now gone without chocolate for nearly a year and I really think I've gone off it or just lost the taste for it

fitness wise, well I am on the mend. I was very fit before cancer I played squash golf and football. After loosing 60% of my muscle tone there is no way I am up to playing a round of golf or a game of squash! but I am back to playing 5-a-side football and recently did 16 miles on my mountain bike. I have also joined a gym to work on those muscles but whenever I get on a weight machine I'm always taking that peg out and inserting it at the top to get less weight....it will come

The tiredness is still there but tends to be delayed in that it will catch up with me in a couple of days

overall I am now 11 months out of treatment and I would say that changes in the last 3 months have been massive and they keep on improving. Even saying that if things stopped where there are now I would be happy where I am now for the rest of my life

anyway apologies to all my life long "survivor" friends on here for not keeping up with you all guzzle Nicola Simon irene i know you are all doing well.  Chris debs smokie I hope you are all well too

LIFE IS GODD

Hi vatch

It is great to hear that life is good - things will continue to get better!  I had a really painful jaw and thought it was just radiotherapy damage and I'd have to learn to live with it. However in the end I went to the GP who gave me antibiotics and now it has gone! What a fool I am!

I am having my brain tumour removed this Friday. As I can't open my mouth very wide due to the radiotherapy they've said they may have to operate while I'm awake. All a bit nerve wracking! Still, hopefully, life can go back to normal soon!

Keep enjoying life!

debbie

x

Hi Debbie,

Hope all goes well on Friday - I'm sure it will. Remember to update us here once you're back on line - we'll be thinking of you.....

Simon xx

Hi Debbie, 

Good luck for Friday! Big hug, Jo xx

Thanks Simon and Jo. I shall let you know how I get on.

Take care.

Debbie

xx

Hi Vatch, All

I am 54 and am just starting to follow in your footsteps....

After the worst week of my life with all the scans (The MRI was the worst, the others are *** cats compared to the MRI) and then surgery on a lump in my neck I await my biopsy results from lump, tongue, throat and my now removed tonsil in two weeks.

Until the operation I had decided not to look to google for advice knowing that the worst would come up first. Post op on Monday I did and true to from up came the spine chilling facts.

I dont have a clear diagnosis yet, but I have been told its cancer and they are looking for the primary site.

To say I am scared is an understatement, but I am strong and have a very special partner and a 3 year old to live for.

At this stage I would like to thank you for your time in writing down your experiences, it has in my darkest hour given me hope for the future, although the journey doesnt sound fun!

So here I am starting out where you were a year ago.

Thanks

Hi

Firstly, mikeymike, I went through the same thing the year before Vatch and I've been in remission for two years. It's v scarey and the treatment is a bit grim (!) but you will come out the other side!  Try not to worry and just wait for the results. I'm afraid that's the the worse bit.

Hi everyone else. My brain op went well. It's definitely not cancer and they removed the tumour ok. I feel amazingly well - just tired. Get the results next week. May need radiotherapy to prevent it re growing.

Love

debbie

x

Mike

Welcome to the club

I remeber that first week well ... the worst of my life ... but it gets better

they never found a primary with me. I did not have the neck opp to whip out all the galnds but went straight into radiation and chemo.

I have set up a blogg that diarised my events through the process you are about to undergo ... it may be of some help www.gammaraygary.wordpress.com/about/

I was 51 when i went through mine I will be honest with you.... the process you are about to go through is not a pleasent one ... but we all go through this differently and the main thing is ...you will pull through.

I am now 11 months post treatment and every three months things improve exponetially.

You will have lots of questions ...so far away happy to help through this and there are many other on here that have been brialliant help to me Irene, Nicola, Simon, Guzzle, Debs and many more.

Things get better and just remember ... you have options ... there are some on here who don't, but that easy for me to say on this side of the fence

Us blokes don't always find it easy to chat, but at times like this we need too

Ask away mate

Deb

Huge apologies for not getting back to you and wishing you all the best

I hope things ghave gone well for you and have been keeping everything crossed for you

XXXX a few more crossed things for you

Hi vatch

thanks for your message. I had my staples out today so just need to recuperate from the op.

it was all quite a positive experience - it was nothing like the difficult cancer treatment.

hope you are well.

debbie

x