So she found a lump...

She asks me if i can feel it... Hardly, i say, but it's there... The gp agreed. Hospital appt arranged for a week's time. Mammogram performed, biopsy done. Hmm... Not much to see - whatever it us it is probably benign. Another doctor will look at it.. Letter comes - another hospital appt a week later. Mammograms again, four biopsies, and an appt made for the following week to look at results and "discuss options". Initial finding of the lump had brought terror and a flood of worst-case scenarios that, despite being too awful to contemplate, were just to big to force down out of mind. The "discuss options" appt (yesterday) was attended with an air of resigned expectancy. Her mum had a mastectomy, her grandmother lost her life to it - there was no chance the news was going to be good. The lump was very small though, so perhaps not too much to be concerned about. The consultant showed us the mammogram image on the screen. He pointed out the initial lump. That was benign, he said, with a sad face, but here is what else we found... They were very small - barely detectable and wouldn't have been discovered for some years if she hadn't found the other, benign, lump - but they were there, a couple of inches apart and, (I'm afraid it is bad news...) "Here is the report...they are definitely tumours. They are small enough to be excised but the chances are there will be more. I recommend a mastectomy"...

"Okay. Can i have a double mastectomy please?"

The psychologist will want to speak to you...

"This is not unexpected - i have read extensively over the last week. It is what i want"

so the appointment with the scalpel has been set for April 1st.

we walk back to car park.

"I saw tears in your eyes," she says... " Why was that?"

" am so proud of you," i say truthfully - " If you hadn't found that lump and got it seen to, things could have been much worse..."

but she is frightened of the operation. The thought of the pain scares her very much. The financial impact worries her. How will our son get to school in the morning. As usual she thinks of others first...

we don't really know what to expect after the op ( and immediate reconstruction using expanders) how long will she be sore for? Will the pain be severe? How long before she can drive? How long before i can hold her in my arms and crush her to my chest the way she likes so much..

how should we feel - really?

  • Hi Jack

    Sorry to hear the problems.  It is far too soon for your wife to go back to work.  My consultant told me I could not go back until my chemo was finished.  I have been of work since mid January and am due to go back for a couple of mornings from 02 June.

    We all find there are things we cn no longer do that we used to do with ease.  Just try and get her to take it slowly and to remember that her body has been pumped full of very strong drugs to kill the cancer and that no-one expects her to do everything she used to.  She may want to, to keep some sort of normality but just get her to understand that it is best if she gets plenty of rest as this will help her recovery.

    With regard to the Letting Agent certainly speak to them and let them know what the situation is.  They may not agree to delay the inspection but even if it does go ahead they will know why things might not be up to your usual standard and most are willing to make allowances.

    Best wishes.

    Gill

  • Deborah decided against me asking them to cancel. I'll be glad when the second course comes around so she can be settled as to what to expect. Last night her hair 'felt funny'. There was nothing wrong with it - it was just because she'd been wearing her wig a lot, but she obviously believes that whatever side effects are coming are waiting around every corner for her - once this course is done and dusted I think she will settle down when she knows what to expect for her three weeks and, although she may or may not feel any better or worse, at least she won't be waiting for some demon to leap out of the dark on her...

  • Changed her mind... I postponed it for ten days, just before second round of chemo as I figure she'll be feeling better again just before she has to go and get knocked down once more. I didn't want strangers in the house anyway when her immune system is starting to dive...

  • Hi Jack

    I know after my first chemo I kept expecting to suddenly feel awful  or for something horrible to happen.  It never did but it is a difficult feeling to get over because so many people do struggle with chemo and jsut do not know what to expect from the first treatment.  Hopefully as you say she will have a better idea of what to expect once she has had her second treatment.

    I think it is a wise move to postpone the inspection by the letting agents.  I was certainly told the fewer people I came into contact with the better and that any contact would be best in the week just before the next chemo as my immune system would be stronger then.

    You are curently doing a wonderful job of supporting your wife and I am sure she appreciates it.

    Bets wishes.

    Gill

  • Thanks Gill.

    She just asked me to look inside her mouth as she can feel a 'furry' patch with her tongue. When I looked, there is a sizeable area inside her gum that has gone a bit pale - looks like your hand when you're in the bath too long... any ideas? No pain or itrritation she says, just feels furry...

  • Not wanting to interfere Jack but it might be thrush.

    If it is she will need oral nystatin prescription or similar.

    Best wishes

    Annabel.

  • Hi Jack

    I think Annabel is probably right.  I would suggest a visit to the GP to get this sorted.

    Gill

  • Thanks for that guys. Her first suspicion was oral thrush but doc said no and that it was normal. It did slightly unnerve her that the doc was getting her info from same internet sites that Deb was...

  • Hi Jack

    I think that would worry me to!  Migth be wise to mention this next time she has a treatment as they may have something they can give her whicc might help.

    Gill

  • She has to go to hospital day before her next treatment so she will probably ask then. She hasn't mentioned it again. She gave her head a wee scratch last night and suddenly said it was really sore. We wondered if it was the start of the hair loss thing - guess we'll find out soon enough.

    She has gone back to work today. I don't think it is the best idea as her immune system is still on the floor, but she is getting bored at home by herself. I just hope she'll be okay