pagets disease of the vulva

l am looking to talk to anyone that has or is going through pagets disease of the vulva

  • I've requested you as a friend and also replied to your 'test' message J x 

  • I saw your message and have replied. I shall be waiting for you to reply then I can give you my number. Xx

  • Hi Euni!

     

    I'm so sorry for my long silence! I havent received any of your messages and just thought to check to see how you were doing and have seen that we have become a trio!

    I have you been? I'm coming to the last few weeks of my cream treatment - it's been a long hard slog hoping I shall begin to feel more like myself once I stop.

    I won't see my consultant until the end of June.  I think he'll only be taking a single biopsy and not doing the mapping he didn't seem too certain.... I wish he was more like your lovely consultant. He could definately use some trainig on his interpersonal skills! Thankfully if I have concerns I have to go through my nurse has the joy of dealing with him. ;  )

    I skimmed some of the previous messages I'm so glad your recent check up was all clear!

    Your lovely walks along the seafront sound lovely.  I'm looking forward to being able to exercise and do more things with the kids again I feel so guilty at not being able to do things and be with them more but hopefully the summer is upon us (once the rain stops - Have you had lots of rain with you too? It seems endless in London) I'll be able to enjoy it.

    Hope to hear from you soon.  I will check here rather than wait for an update (I've learnt from my lesson now!  :  )

    Shars x

     

     

  • Hello stranger, wonderful to hear from, not since way before Christmas 

    we are not 3 but 4 and I can now  talk privately with them, Jackie has iPhone/pad so we FaceTime but Skype is possible as well  they both have procedures coming up so will need all the support we can give them

    im surprised my messages did not get through to you, and I began to think the worst with Covid around. But hey your kicking life and we are again in communication 

    woild you like to set up the talking privately part, not worry if not, but if yes I will start the ball rolling. Just to warn you  It's not always straight forward 

    very best wishes Euni 

  • Hi Euni,

    Yes that would be great! Let me know if I need to do anything.

    I was alerted to the message you've just sent but not the previous ones.  I only thought to check as i remember this happened previously and low and behold there were lots of messages and your messages with one of the other ladies.

    It's nice that we've all found a way to connect and support each other.  I hope their procedures are successful. 

    I have an iphone/ipad too if that makes it easier.

    Shars x

     

  • Hi Shars. Where are you? You have disappeared again I hope you are getting the notifications to let you know I am trying to contact you. I have sent a private message with my contact details. I'm having great chats person to person with Jacki

    xEuni

  • Hi Euni!

    I've not been getting any alerts! I got this one as i think you replied to my message. I've just sent you a message!

    Look forward to hearing from you soon

    Shars x

  • I have replied as a private message! XE