Introduce yourself on Cancer Chat

Hello everyone

Today marks a year since we launched the new Cancer Chat, how time flies! In the last 12 months we've shared our stories, laughed and cried and become a real community so I thought it was about time that  we introduced ourselves to you properly.

I'm Sarah and I'm the Cancer Chat manager. I have managed other online communities before coming to Cancer Research UK and am a cancer survivor myself. I went through my treatment in 2009, and so I know how helpful and supportive Cancer Chat can be from personal experience.

There are three moderators who work with me, Renata, Jane and Lucie. All three moderators juggle their Cancer Chat duties with their roles as busy mums and work different shifts throughout the week to ensure that Cancer Chat is appropriately moderated. They help direct members to appropriate information on our main Cancer Research UK website and liaise closely with the specialist nurse team to help answer questions or offer support. Above all, they ensure that Cancer Chat is a safe, secure and welcoming place where anyone affected by cancer can come and ask questions, share experiences and meet people who are also affected by cancer.

We thought it would be fun to tell you a few interesting facts and also share our new avatars which you'll be seeing whenever we are online.

Sarah - is a 70s music addict

Renata - is a mad George Michael fan

Jane -  is a journalist

Lucie - is French

Now it's your turn! We'd love to know more about you, so we've set up this new topic area where you can introduce yourselves and say hello to new members. Don't forget everything is public so don't disclose anything too personal!!

Best Wishes

Sarah

  • Hi everyone......i have bladder cancer...and have had for 16 years now.

                          I'm just about to start a course of BCG, i'm a little apprehensive, but I just hope this might put a stop tto the tumours progress once and for all...

                          As with a lot of people in the same position, I find it hardest to keep my head straight with the continuous problem down there...

                          Be nice to talk to someone who has had the same treatment.. or is about to..

                                                                                                                              All the best

                                                                                                                                            Terry

  • Hi Terry,

    No experience of this, sorry, mine was breast, but glad you've joined us.  I'm sure someone will be along soon who can relate to what you're going through.

    In the meantime, Welcome, and happy to chat anytime.


    take care

    S x

  • Hi Terryl,

    Welcome to Cancer Chat. You've come to the right place to find others to chat to who are in similar situations to yourself.

    I hope you enjoy being part of the Cancer Chat community and that chatting to others on here is helpful to you.

    Best wishes

    Renata

    Cancer Chat Moderator

  • Hi...susan

                   thanks for the welcome / reply .. hope to chat later.....again thank you..

  • Hi renata.....

                        Thanks for the welcome / reply ...hope to chat later.....again thank you..

  • hello,

    My dad died of a brain tumour last month which he had been fighting for 18months with, we was only told in September that the cancer was to aggressive and they couldnt control it, this was after 2 operations. Im 22 years old so i was still living at home with both my mum and dad. It was sole destroying watching him deteriorate, he lost the ability to write, talk properly, move properly etc. the last 4 week was even worse, he had a couple of big seizures which left him not being able to stand up, couldnt speak at all, couldnt do anything himself. We had a bed and full equipment installed at home so me and my mum could still care for him as long as we could because he wanted to be at home. We had careers coming in the morning and at night. It was horrible watching my big strong proud dad not being able to do anything for himself. and one of the worst things is that in his head my dad was still there like normal, but his body just wouldnt let him do anything, or even speak. Even though he obvioulsy knew he had cancer, we never once told him he was actually dying, we was never sad around him and still made plans of what we would do the year after when he starts to feel better etc. It came to the day where my dad was in and out of a coma type state, so he had to go into a care home. we stayed by his bed side for two days watching his breathing get worse, i believe what they call the death rattle. then on the second night we watched him slip away and take his last breath.

    You would think i might of been abit prepared for it, but i was and am far from it, iv only just realised now i never accepted or realised that my dad was not going to be here, even when i was told he was going to die, not once did it sink in, i must of just thought it would just always carry on, the caring etc. Even now i still think hes going to walk through the front door, hes at work, gone shopping. i dont know how to accept it or how to deal with it.

    I cant really speak to my mum about it, has you can imagine my mum as lost her best friend, her husband, her sole mate, they where together 35 years, and im trying everything to help her and make sure shes okay, i wont cry infront of her as i want her to be able to count and rely on me.

    I just feels so unfair as when i was 15, my dad was diagnosed with throat cancer, and he beat it! (he was just short of his 5 year all clear when he got his brain tumour) And when i was 17 my mum was diagnosed with breast cancer, and she beat that, her next check up will be her 5 years all clear. But why did it have to happen to us again!!!

    Now i just feel numb, lost, unsure of what to do. i feel like time and days are going by but im just on pause mode and watching everyone else move and carry on with their lives. And i know life does go on and you have no choice but to go on with it. but i just not sure how to even begin ... any idea's the people who may have been through something similar

  • worried sick havent been diagnosed with cancer but fearing the worst dentist found a white patch ans a lump inside my cheek
    am 53 and have smoked since i was 11 am not proud of this i now have an appointment to go for a biopsy has anyone else been through this who could give me any advice
    please thanks 

  • Hello there

    You've come to the right place, there will be someone who will be able to help you. Im a newby to this site myself.

    However I do have experience of having a biopsy myself and I can tell you that from my experience it wasnt as bad as I thought it would be. My ex daughter in law had very similar to you. That was a couple of years ago now and she's fine now. Scary at the time for all, but she's come through it. Try not to worry to much, although posting this time of night on here suggests that you are really worried.

    Relax in the knowledge that they are on to it now and can sort it out.

    This is a brillaint site for getting answers, letting off steam and making friends with others that are in a similar boat,

    Take Care and let us know how you get on, Marian x

  • Hi Unsure,

    Welcome to Cancer Chat.

    I'm pleased to see that you are already getting some uselful advice.

    I hope you find benefit from being part of this community and get the support that you need.

    Best wishes

    Renata

    Cancer Chat Moderator

  • Hi, I,m new to this so don't know exactly what to say. I'm worried about my mum and dad. My mums a carer for my dad, he has had lung cancer for a while, but various treatments has

    not worked. He is a fighter and is still fighting the cancer, but it is taking it's toll on everyone and i worry about my mum, then i feel guilty as it's dad who has cancer. I try to be strong but get emotional when i visit, which i feel doesn't help. I even feel guilty talking oh here about it but i'm at a loss of what to feel, say, do.