Struggling with side effects from chemo. The nausea and diarrhoea have taken over my life

Hi

I am currently undergoing chemo and never realised how badly, I would be affected by side effects.  

I had assumed life would carry on, but I am barely able to care for myself and spend weeks laid up. I don't get out. The nausea and diarrhoea seems to be ruling me.

I just wondered is anyone else like this? I've had amendments to treatment and various anti sickness but at times it is raising negative thoughts.

Any tips, advice would be appreciated. I thought, I'd return to work but instead the sofa and bathroom takes up my whole day.

Thank you 

  • Hello Neverimagined and welcome to the Cancer Chat forum.

    I'm so sorry to hear how much of an impact the side effects of your chemo are having on you and your daily life.

    I can't begin to imagine how difficult this must be but I hope you can take some strength, and comfort, from knowing that the Cancer Chat community are here for you and I'm sure some of our members who have been in a similar situation will be along soon to offer their support and advice.

    Given how challenging this situation is it's completely understandable, and natural, for negative thoughts to creep in but if it ever gets to a point where these thoughts become more frequent and/or overwhelming, please make sure you tell someone and reach out for support. If you feel unable to talk to your family and friends about this then don't hesitate to get in touch your GP or medical team as they will understand and will do all they can to support you. I hope this section of our website that we have about mental health and cancer will help you manage those negative thoughts as well but for those times of the day, or night, when no-one is around the Samaritans are available on 116 123, 24 hours a day, 7 days a week. They are there to listen and will do all they can to help you work through any difficult thoughts and emotions you may be contending with.

    I really hope it won't be long until you start to feel the benefits from the changes that have been made to your treatment Neverimagined but I hope this information we have about nausea and cancer and these tips we have on coping with diarrhoea will be useful too. You can also give our cancer nurses a call about this on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all they can to help.

    Do keep posting if you find it helps and remember that with us by your side, you don't have to go through this alone.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hello Neverimagined,

    Welcome to the world of cancer treatments, well more like you are welcome to that world. Being not tolerant of many drugs and allergic to most ,imagine my delight upon hearing that not only would l receive chemo in tablet form,but the added delights of radiotherapy as well. Not content with just tablets pre-surgery, l then experienced the joys of infusion and tablet post surgery.To say the effects of which were truly Biblical would be lacking in widescreen technicolour, and l am no Ben Hur.

    Chariot-less, as l dragged my sagging wilted frame up for yet another dash to you know where, well uncontrolled untimed stumble more like, one thought over-rode all others.If l was getting done over this hard,just imagining what my unwanted invader had stumbled into gave me the grim satisfaction that it had made a lousy choice of recipient this time round. 

    That one thought was the dulll ight shining in the distance that kept me drawing towards a future that held a promise of dazzling sunlight when l could reach it. Of no use to my piggybacking unwelcome guest because it only lurked in dark unseen places, l knew if l stepped into that light l would do so alone.

    Twelve years on the sunlight warms my face, my body has aqquired a chariot to get out and about, admittedly it has a few bent wheels and the brakes are slightly sticking on, but the smile l carry within me more than compensates for the inconveniences garnered along the way.,

    l think what l am trying to convey is todays fight can pale into insignificance in tomorrows wins, that your horizons need to stretch further than a few weeks.When you are knee deep in the proverbial it can be difficult to see beyond that and so easy to accomodate negativity into your reasoning.

    At first sight cancer looks like it affects your body, but its invidious qualities can have effects on your mind.Caught up with the aftermath of treatments it can be easy to assume you have no control, the drugs will do the physical kicking, but you still have control of your mind and how you focus that

    Find your positives in your situation, they will be there hidden amongst the everyday negatives you are having to deal with, use them to furnish the room within your mind, giving less space to the nadgers that pull you down.

    l in no way seek to diminish the struggle you find yourself in and acknowledge the place that you currently occupy, being previously a forty times a day man myself, and l am not referring to cigarettes, but seek to offer support in your hard climb back to health, and wish you you the very best in doing so,

    David