Hi 

Just to introduce myself.  I am 64 year old and was diagnosed with Neuroendocrine Carcinoma on the base of my tongue in June of 2024.  I had to go through various surgical ops in preparation for the start of chemotherapy/radiotherapy.  The tumour was large enough to affect my eating hence a PEG was fitted, its continued growth threatened to close my air passage so a tracheostomy was performed.  I had chemotherapy and after 6 sessions the tumour was still growing. The next stage was radiation therapy which I had 5 sessions a day for 6 weeks.  I really struggled post radiotherapy with the recovery.  The next step was the PET scan but prior to that I attended a consultant appointment to be told I was clear of the cancer.  The PET scan highlighted that the cancer was still evident.  This prompted another biopsy which came back clear.  As I was still in a lot of pain the consultant arranged for another biopsy to give reassurance that the cancer was clear.  I was told today that this biopsy had shown the tumour was still there.  I was floored by this news.