My wife has been diagnosed with a glioblastoma brain tumour

Hi,

Three weeks today since I had to rush my beloved wife into hospital with suspected stroke. But it wasn't a stroke.

1 inch size tumour above her left ear and a small tumour in the kidney as well. Totally unconnected the doctors say.

So two primary tumours. The brain tumour is suspected grade 4 glioblastoma and it's aggressive and has spread in the brain.

She has recovered her speech and is almost back to her old self. Biopsy on the brain today went well. They're not bothering with the kidney at the moment.

I'm hoping this forum will give me a window on what to expect in the coming weeks or months. The surgeon has advised we're looking at life expectancy in months rather than years.

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    Hi Nevada,

    It's good to hear that you are managing to distract yourself from your situation at times with your iphone game.


    I know exactly what you mean about the memory. My hubby had a quadruple by-pass when he had just turned 50. He took pheumonia immediately after that, then had a stroke the following week. It took 11 months to get this diagnosed, despite getting him admitted to hospital at the time. The consultant advised him to stop work immediately, or he said that he wouldn't see Christmas. That was in September! He got no financial benefit from the Government, because the young chap at the Job Centre who assessed him, stated that he was fit enough to work.

    He has just turned 76 and has had several TIA's over the years. He has also developed Diabetes, Vascular Parkinsons, Heart Failure, Hearing problems and now Dementia. As a ex university lecturer and author of 32 technical tomes and a member of MENSA, he is very aware that his memory is failing and this is upsetting him. He is now falling a lot and gets very dizzy and unsteady on his feet. I have had 2 bouts of breast cancer myself. I take regular fits too, so I am not in the best of health to care for him. It's hard to say who is looking after who at times!

     It can be quite frustrating when you have to repeat the same conversation over and over again and I frequently question my own sanity, when he too denies that the conversation ever took place. When you attend the centres for treatment you often meet young people who are worse off. This is a terrible disease, which is affecting a large proportion of the population. I do hope that Heather may be able to survive for 5 years or more, because of her previous good health and fitness.

    It sounds as if her chemo has made some difference, when the area surrounding the tumour  is looking so much better than it was at her last scan, in February.

    Please keep in touch. I am always here if you want to chat.

    Kind regards,

    Jolamine