Yes they did ! I didnt even ask , my chap has been with me through everything , apart from biopsy - (now have vision of him gowned in theatre lol ) ... yes take someone with you ,, and when you get called just grab their hand and go in together 

x

I had honey at the Start and it did help, will get it back out as I'd forgotten about it. I also looked at the price of manuka honey and nearly choked ha! 

oh gosh - why do you have to have teeth removed for radio therapy? your poor mouth!! 
 

ok I will take my partner in with me and give it a go. If they ask him to wait outside I think I'll breakdown and beg! This whole covid and having no support in the hospital is really damaging. I sat and cried on my own for 3 hours before the biopsy!! X

Yes and do try the salt water gargles - they really do work and they don't hurt sore areas .

Apparantly , anyone who has to have radiotherpay to their mouth have to have their teeth x-rayed .  Once you have radiotherapy to your mouth area they do not want you to have any invasive dental work for 2 yrs because the blood vessels to the jaw can be damaged and this means your jaw will not heal after , there is a name for it , Osteo something or other .  I had an old root canal that the dentist said would be best removed and a molar that was more filling than tooth , so both were removed - the root canal was very stubborn and i had to have the gum cut to get it out and more stitches , uff  - it is  healing fine though - lots of salt rinses etc - and yes my mouth feels like it has been totally abused these past months - and I have had some very low stressful days indeed .  Sleep evades me , I wake at 2 / 3am and cant get back to sleep - I have been using some mindful meditation apps and I must admit they help to get me back off again rather than dark and silence and my chap doesnt mind me disturbing him and he listens to them too

I know how you feel , when my chap dropped me for day surgery for my op and had to leave me I was a wreck , i have a massive fear of hospitals too ! 

I dont think they will refuse your partner at ENT - when we went in they just asked who he was in relation to me and then see us through , and many others were in with partners , fathers/ family etc , very few went into their appointments alone 

Jo

 x

Oh bless you and your poor mouth. At least you've got all the surgical things out of the way. One step closer
 

I've also started with the sleep issues, every hour I wake and my stomach turns when I remember what's going on. Sometimes I can't wait to sleep to try get away from reality but it sometimes haunts me in my dreams too! Terrible. Just want the results over with now. 
 

fingers crossed they let him in then or I won't be happy. Hope you slept ok x

Good morning

Yes, i had a good sleep .  I did wake briefly about 4am and wentt to my calm app and put rain soundscape on .. woke about 7:30 to my chap saying , "yikes its been raining for hours , i dont think we'll be going for a walk tofay"  . Said to him its my app he said , "oh, at one point i was going to get up and cieck the gutters lol ...

On a serious note I have been prescribed sleeping tablets by my doctor but i avoid them , i would have to be deaperate to use them but have used them when need be , but i dont want to become reliant .. she also gave me diazepam, again not really ideal but I took Diazepam each time i had an hospital appt to try and calm me 

I hope you have something planned this weekend to occupy your mind - we are walking , its a beautiful day and i hope to keep walking for along as treatment allows me to as well .. 

x

Glad you managed a good sleep and are going to enjoy the day! You seem to have a great mindset which I'm sure will be a massive help to yourself in the future. I wish I could say the same for myself. I suffer with severe anxiety and I can't get this appointment out of my head, reading into the appointment letter and notice I've been changed to a different clinic which to me says the worst. Just dreading it. Want it to be Thursday now to get it over with but also don't want Thursday to happen cause I don't want to hear it 

How and when did your symptoms start?

Is your appt still with ENT? 

When i was in your limbo I used to say i wish i had an off switch .. so I could forget everything .  
 

I am not strong no matter what others think ... inside i am in turmoil .  I lost a stone  in weight in one week from the day my doctor told me she waa referring me on a 2ww urgent ENT - I still havent gained the weight back and i dont have much to lose , but my anxiety just burns up any food eat . 
 

It is goog to talk to others in the same situation , easier than speaking to your loved ones .  If i speak about it with family I just end up crying .. 

x

I never really had any symptoms. I looked in my throat and noticed a funny looking growth (looked like a third tonsil) behind my left tonsil and some swollen tissue on the back of my throat. But if I hadn't have looked in my throat I would have never known. 
 

yes my appointment is still with ENT but says clinic 145 instead of the usual 140. Feel sick thinking about it. What did your appointment letter say on it? 
 

oh jo, my heart aches for you. Such a terrible place to be. But keep thinking positively (I know it's so very hard)  I've also lost a stone with no weight to play with! Another thing to worry about. I also have a toddler to entertain and I feel so guilty as I just want to be alone x

okay.  Mine started with a simple niggly sore throat .  I had my 3rd Covid Booster mid December and thought it was just a side effect to that.  Was not really painful and took no painkillers for it.  Then come new year i was thinking it is still there .. so took a look in my mouth and noticed one side looked odd to the other , like lopsided to the back around my uvula.  I called my Doc and she left me some antibiotics out and said call her if they didnt work ..Well , they did nothing., so called back  and was told I could see my doc in a month , by this time a little bit of worry was kicking in  as I had beeen googling (as we do) and said i wasnt happy to wait a month and that i could also see a small lump forming on my soft palate to the left my uvula , so amazingly I got an appt earlier reduced from 28th Feb to 14th Feb . Come 14th Doc took one look as said I am referring you for urgent ENT , she said its probably nothing but literally the floor felt like it had fell away and I was falling and falling and I still feel like I am falling to some degree...  as i still have this darn PET scan to get through .. 

From the time I got seen at ENT the lump had doubled in size.  I had the nasal prob up and guy said he wanted the lump biopsied and an MRI ..  have you had an MRI? 

I know how you feel about wanting to be alone.. i was like that too.. i still have days where i just go to my bedroom away from others and read or sleep, sleep is a great escape .. don't feel guilty it is totally normal responses.  I have two girls at home , one 14 and one 24 and really do need to escape at times ,, hence me an chap walk a lot at weekends lol ...

Have you looked up silent reflux?   but hey, whatever the outcome , I will be here .. hopefully come Thursday you  will be told positive news and you can sign out of here and carry on with life...  most ENT referrals dont end up as a Cancer outcome .

x

Oh my throat looks lopsided too to one side of my ulvula did the consultant give you any inkling of cancer before you got your results if you don't mind me asking? Yes I had the mri a couple of days before the biopsy. I had bloods too. 

when is your pet scan again? It sounds like it's all moved v quick for you and it's been found early so fingers crossed nothing will come out of that scan and you can get moving. This time next year I'm sure this will all be in the past and you'll be back on track to enjoying life to the full!! 
 

no I will look up Silent reflux. As much as I don't want to admit it to myself I know the answer though...