End of life despair

Hi all,

my dad is at the end of life with prostate Cancer that has spread to his bones and nerves on his spine.  He is now bed bound with a driver and has a cathator.  He has carers coming in and district nurses and he is still eating and drinking but has started with secretion and is suffering with this badly.  We are trying our best as a family to look after him, he has been in the hospice for pain management but we want to try and keep him at home.  He wakes all the time through the night and doesn't make sense half the time, but my mum is struggling with lack of sleep as it's full on through the day (both me and my sister work, and although I can work from home or there house I can't really help much). Me and my sister stay a few times a week to help out my mum.  We did have night carers coming in but had a bad experience with one so my mum didn't want them anymore.  Part of me hates to see my dad suffering but half of me doesn't want him to die.  I feel so helpless at the moment.  Also have no idea how long he has left.  It's says once secretion sets in it's usually a few days but he has been struggling a week or so with it and he still has his colour.  I feel so alone.  My family don't want to discuss death or want to know time frames.  He said today he wishes he was dead.  My mums at rock bottom and is exhausted.  Me and my sister are trying to see to our family and be there for them (my son is 6).  Is there anybody out there struggling like this as at the moment I feel so alone and absolutely heartbroken .

 

Thank you for reading.

  • Hi, Am so sorry for what you are going through. Cancer is such an evil disease, especially at the end. Spend as much time as you can with your dad. Even when sedated he can hear you. I did everything I could for my dad and was with him until the very end and this has brought me great comfort that I was there when he needed me the most. I also take comfort in knowing he is free from suffering and can now walk and is able to use his hands and is back to being the independent man he was. He will live on forever in our hearts and I will never forget that I had the best dad in the world. Sending you all the love in the world to you and your family ️ ️ ️
  • Hi,

    I have replied below.  For some reason I have replied to myself.  Useless on these sort of things.  Sending all my love to you and your family ️ ️ Xxx

  • Hi there,

    Hope everything is coming into place for you.  Unfortunately I lost my dad on 4th December.  The last few days were horrendous but he died peacefully at home with me and my mum there.  I have been so heartbroken over the last week and my son saw me cry and it upset him so much (he's only 6) and I thought my dad would hate me being like this.  So I have decided I'm doing Christmas.  I have bought a personalised bauble so we can see him everyday upto Christmas and me and my son saw a shining star tonight and I told my son that's grandad and he waved to the star and shouted we miss you grandad, and went and got the bauble and held it up to the star.  My mum is struggling she has looked after dad that long she doesn't know what to do with herself but I am doing as much as I can for her too like I promised dad.  My sister is sorting everything out that is her way of getting by.  Stick together as a family and you will get through this, and keep contacting district nurses, Macmillan, GP.  If you need to chat just message me.  Most of all look after yourself too.  We sometimes neglect ourselves with everything going on.  Sending lots of love to you and your family ️ ️ ️ Xxx