Hi i've just read your post and firstly want to send best wishes to you. My husband was diagnosed with cancer Dec 5th 2018. originally thought in the liver but since been told it started in the bile duct. Why o why do these things happen?. He has had 2 rounds of chemo but on the last appointment with the consultant they said he couldnt have any  more because  he has lost more weight and can't keep food down. It breaks my heart to see him like this. So I know how you are feeling. My husband is not one to ask how long and doesn't want to know.,  They did say they cannot cure it but will try and manage it. I'm struggling with this and they won't tell me due to patient confidentiality.They have given him steroids to boost his energy and appetite which is working and hopefully go back to a different strengh of chemo. It's so awful. i'd love to make plans and do thing but he is too sick. will chemo make him better or worse and is there any point if he's suffering? I'm here if anyone needs to let of steam....

Hi debbieduck.   So sorry for the horrendous situation you find yourself in   My husband was diagnosed September 2018 with oesophageal cancer. Already spread to his lymph nodes and to large to operate.  Bang that's it  Quick as that.  In one sentence  He's having chemo to try prolong the inevitable  But he's not good and if this is supposed to be helping I can't see it at all  He's just going downhill   I can't cope  I'm losing my mind trying to get my head round it   He doesn't want to know details but I did   I can't understand why they said they couldn't tell you because of patient confidentiality ???   I had to know and if you need to they should tell you  That's wrong. My husband is 57 .  How does anyone get through this because I really don't think I'll be coming out the other side.  How old is your dear husband ?  I really need help with this.  I need to be able to talk to someone in the same situation xxx. Love and prayers to you sweetheart xxx

Hi debbieduck . I sent you a reply to your post last night you've maybe not seen it or had chance to read it x or maybe you don't feel like talking  That's fine. X  I just wanted to send you all my love and understanding in our awful situation xxxxx 

hello there

i know there’s not been many replies on this thread for a while but I don’t know where to start.

my Mum fought bile duct cancer 3 years ago but just over a month ago started with pains in her stomach. She went to our gp 3 times & was being treated for a water infection, but ended up in A & E with serious pain in her side. After a scan & 2 weeks in hospital mums stent was blocked & her cancer had returned, it’s also spread to her lymph nodes she can’t have any chemo yet as she’s too week. The oncologist had said to go back in 3 weeks to see if she’s fit enough to start.

i don’t know if she’ll ever be fit enough to start chemo & don’t know what to do

Hi smellysocks I'm so so sorry for the situation you find yourself in with your dear Mum. I don't quite know where to start in trying to offer you any words of comfort. It's awful for anybody who finds himself affected like this. The last post I put on this thread was in middle of February. I'm sorry to say my beloved husband passed away a few weeks later. He only had a few months from when he was diagnosed so although he had chemo there wasn't really any chance for him. The type of cancer he had was very aggressive. I hope and Pray that something can help your mum you said that she fought it 3 years ago so perhaps she will again I really hope so for you. I never never expected my life to be like this I'm only 50. And my husband was only 57. I can't do anything to change what you're going through. The only thing I can do is try to promise you that however hard and however bad things are you will come through. I didn't think I would ever be able to do this to manage the loss of my soulmate.. it is all so horrendous . I don't know how I'm carrying on but I have and whatever this throws at you you will too. I can't actually believe the words I'm saying as I felt and still do the same way you do. And I'm not a strong person.  But honestly you will be OK. If you ever want to talk message me   xxxxxxxx. 

thanks for your kind words

im too not a strong person & blubber every time I think of being without my mum ( I’m 48)

Im just wanting mum to get fit enough to be able to have chemo but at 70 she’s still quite ill.

My mum has just been diagnosed as confirmed cholangiocarcinoma which has spread to the lymph glands behind the pancreas this was only found when surgeons were trying to do a liver re-section to remove the original tumour she cannot be operated on now due to the spread and will hopefully be able to start chemo as soon as poss there is a charity called ammf which I have been told of which is specifically for those with bile duct cancer hope all goes well for you

hi

sadly my mum passed away on the 9 September only 10 weeks after diagnosis. I miss her so much & am really struggling to cope some days.

i do wish you lots of hope with your mum keep fighting 

Hi, so sorry for your loss my husband passed away on the 3rd of September from this horrific disease he was only 55 and I am 49 with 2 children who are although young adults find it very difficult that their dad will never be here again. I miss him so much and can relate to how you must all be feeling. My husband Carl fought to the end it’s been a very bad time from the beginning when we was told, I’d give anything to have him back. Carl had an amazing send off Ashe had wanted be strong and I’m here to talk to you also xxxx

Hi Judith my mum was diagnosed with bile duct cancer 4 years ago, she had 2 rounds of chemo & a stent fitted & did really well. Because of where her cancer was unfortunately it was inoperable. She had a scan after her 2nd lot of chemo & was told that there was no cancer to measure. She saw her oncologist every 3 months for check ups & everything was great.

but at the end of June she started with pains under her ribs & ended up in A & E, after a scan her cancer had returned & had grown considerably. After her stents replaced she returned to her oncologist who sadly told her that she only had a few months to live, she wasn’t well enough for chemo & only palliative care was offered. 

I lost my best friend on the 9 September. She was never in any pain but she would vomit all the time, she had a driver with anti sickness.

 I miss her so much and struggle to talk some days.

if there is anything I can help you with please ask.