Hello Clare.  I have just seen your message.  Like you say Clare, you will soon be free from the pain, and you will be with your mum and your daughter again.  It's the same for me........I know my end is very near........as you say, it is sad and scary, but also a relief.  No more pain.  I am sitting here with a cup of tea, and I am thinking of you mate, xx

Hello I’ve not been to sleep, I don’t know why it’s happened like this , I sleep in the day and awake all night. Do you know how long you have. I’m sorry you are feeling scared too . I guess like me you are sad for what you’re going to miss and what could of been. Sending you love xx 

I did send you a private message you other day that is a bit hard to work out so you maybe not have seen it 

Hi Clare.  Same here.  Asleep during the day and awake all night.  Back in November 2022 I was told that I had a year to live.......I have gone 8 months past my 'sell-by' date, so I know that it can't be long now.  xx

Sorry Clare, I am the world's worst at anything technical.  It takes me ages to figure out even basic technology.  xx

Bless you it’s a horrible feeling isn’t it knowing that one day that’s it xx

It’s ok no need to say sorry I’m the same xx

Yes, it isn't easy is it Clare?  But part of me feels relieved that I will soon be free from the pain and everything else that goes with this monstrous illness.  

i feel the same ,that it will be over no more pain   Xx