Hey guys,
Im Garry and was diagnosed with bladder cancer in february this year age 34, I had my firdt turbt followed by 6 instillations of BCG treatment following which I didnt have a great time very frequent urination and spasms this passed about 2 weeks following my BCG and was bad but tolerable.
Results back as high grade NON muscle invasive
A few weeks later I had my routine cystoscope and there were areas of suspicion so off for another turbt which went well the biospy revealed no signs of cancer.
Started bcg again around 6 weeks ago by the third instilation i wasn't able to hold the treatment for the full 2 hours tapping img out at about 1h 10 mins, the usual followed very irritated bladder peeing all the time but nothing i couldnt cope with but as time passed the symptoms worsened
Im opening my bladder as oftern as every few minutes when there's anything in there and when its empty i get horrific spams and blood and still urges to go.
Visited doctor who did urine culture and perscribed antibiotics which did nothing to help a day before they were due to finish i wasnt doing too well lots of spasms and pain literally no sleep some nights others i was lucky to get 30 mins before having to urinate this culminating in my partner phoning 111 for advice and me ending up in an ambulance long story shirt more tests more antibiotics and still no help i was at my wiys end.
In eventually got an appointment with my urologist yesterday who perscribed yet more antibiotics and 2 types of medication to help spasms which seem to have helped a little with the pain but the frequent urination just won't quit I literally need to urinate between every few minutes and every 15 minutes very occasionally an hour if I fall asleep.
Im at my wits end with both being tied to the toilet and lack of sleep to the point where its really affecting my mental health has anyone else expirienced this abd can help reassure me things will return to normal at some point.
Sorry for the rambling post i needed it off my chest for referance ive been to the toilet 6 times while writting this post.
Side notes
I'm drinking just water
Avoiding foods considered irritants
Stopped smoking
