Hi  Hayley,

I am Sorry too meet you here! Im 38 and have a young family. 
 

I was diagnosed with Grade 3 IDC and High Grade DCIS Lymph Neg and clear margins from my Lumpectomy. Mine was also Oestrogen Fed HER2-. 
 
My Onco Score was a 10. 
 

Due to the Fact my Grade was a 3 and my age my oncologist told me that Chemo was a good idea and I agreed.

i have had 3xFEC and 3x Docetaxil. My worries were the same! I want to do everything I can possible to ensure that is doesn't come back!  I thought to myself I am fit and healthy so let's get it done..

I am on my last one out of 6 which is on Thursday, I used the cold cap and that worked well. It's really tough but only for the first week after treatment, it is very do-able and the side effects are well managed.

I am sure that if you speak too your Oncologist and tell them how you feel they will take into account your thoughts, Do you want Chemo?? 
 

I have Radiotherapy' to come next and also Tamoxifen, I already fear if returning and don't actually know how I will get through life with it hanging over me. 
 

Love Sarah 

Hello lovely,

Sorry what is IDC that's not a term I have come across. Really sorry to hear your story :( it's horrible isn't it. How did you find out you had DCIS ? 
My issue is I have two sides one part is invasive which is grade 2. However they are not sure they 100% cleared my margins, and I also have grade 3(high grade) DCIS 40mm. So I was offered a mastectomy which I have agreed to.

Yes I would take chemo if they offered it to me I was just worried because my score was 15 they May Say no! However lkke your self my age and grade really should mirror that score. 
I am also scared jr will return due to me being young and the risk is higher in 10 years than 5 :( I guess we just have to keep a close eye on our body xx 

Hi Hayley,

Sorry IDC Invasive Ductal Carcinoma, I found a lump in October 2021,, I think they will suggest Chemo, as mine was a Grade 3 and my age there was no question it was a definite.

Yes I will have an injection to Supress my ovaries but my Oncologist wants me too have them removed, I have my appointment with HIm tomorrow about Radiotherapy and Tamoxifen etc.

Gosh sounds like your going through the Mill. We will have yearly Mammograms for 5 years but i will still be super worried. As you say we will just keep an eye on things. 
 

It's been so hard, such a long process everything seems to take so long. Xxx

I have my first oncology appointment this Thursday so we will discuss it all then but I will also be putting all this across to him, as I want the best treatment and I honestly think I need chemo, 

ah that makes sense ! See my invasive side was grade 2 ! My DCIS was grade 3 

im not sure they do mammograms when you hehe a mastectomy however if they don't remove my other side I would on that ones 

did you have genetics? It really is a scary place to be isn't it :( I'm here if you ever need a chat xx 

Hi, oh yes I am not sure if you still have a Mammogram, you must have some kind of scan. 
 

Yes have a chat when you have your appointment. But I am certain they will suggest Chemo. 
 

No nothing in the family, just bad luck, and I went to the GP she was not concerned at all. Said it was likly a Cyst but I had hurrendous burning on my chest On that side so knew it was something.  I went to the appointment in my own, my husband knew I was going but I didnt tell my Mum as my Dad had just passed away. They were very Matter of Fact when I had my Untrasound, i literally fell too the floor. 
 

I hope you get some answer on Thursday xxx 

Hey, I hope you're doing well. I was just wondering how your treatment plan went? Did you receive chemo? 

I'm going through a similar diagnosis and was told I'm unlikely to get chemo, im in my 20's and much like yourself the thought of it coming back is a cause for some anxiety.

All the best 

User 

sorry to jump on thread but didn’t want you to go unnoticed im not sure these ladies above are online still as posts were 1 year ago ypu msybe lucjy tgey coukd we’ll see it 

are you waiting on a Oncotype score ? 

Thank you for the reply. I'm not waiting on one as of yet, I'll be getting a mastectomy towards the end of the month and sentinel node biopsy and from there ofcourse a clearer diagnosis will come to light. 

For the time being extensive high grade dcis and a small amount IDC and hopefully it stays as just that. Is an Oncotype score something everyone gets? 

Hello lovely 

the Oncotype test is a test where they send your tumour to America to assess reoccurrence scores , sometimes oncology use this to determine if chemo is going to be beneficial to you , I requested the oncotyoe test myself but thankfully my score was low and chemo was not required in my case it would have done more harm than good xx 

Hello lovely 

the Oncotype test is a test where they send your tumour to America to assess reoccurrence scores , sometimes oncology use this to determine if chemo is going to be beneficial to you , I requested the oncotyoe test myself but thankfully my score was low and chemo was not required in my case it would have done more harm than good xx 

You certainly have a say in your treatment but you need as many facts as possible to make your decision.

I have recently had a double mastectomy and removal of 21 lymph nodes and just opted to pay $5,000 (Australian) for an oncotype DX Breast Test done in US which I should receive results in 2 weeks. At the moment my prognosis based on type, grade, size of multiple large tumors, minimal lymph involvement etc  is 80% and only a 1% chance of chemo improving prognosis. This extra test will give more accurate figures but very expensive. Of importance is that my cancer type is extremely sensitive to hormones so hormone suppressant therapy is by far a better option. 

Just be sure you know all the facts when making your decision as you don't want to have chemo when it may not help. Good luck. x

Manageinit 

good luck for your Oncotype results x