Drugs removed from Cancer Drugs Fund!

Hello Everyone,

My name is Danny.

The UK Government has just announced the removal of a huge number of life preserving drugs from the Cancer Drugs Fund list of agreed treatments.

Please help us get them reinstated by signing this petition (it takes literally 2 minutes):

https://petition.parliament.uk/petitions/107548

My Mum (one of so many I am sure) is someone who may have one day benefitted from one of these drugs so my Dad started the above petition.

The Cancer Drugs Fund was an emergency budget introduced to save or prolong lives while the National Institute for Clinical Health ponders on whether to agree funding. In a crass, hurried review of the drugs on the list massive cuts were made both in May then again September 2015 which denies potentially thousands of people remission from cancer, They quote the drug manufacturers' figures based on average extension of life but these figures do not represent a huge number of people who gain years from these drugs as they include people who immediately fail to respond to them.

Thank you so much,

Danny and Family

  • Hi Danny

    I've just signed the petition It's an absolute outrage to cut these drugs when you see all the money wasted on other things.I will have to try to calm down now before my blood pressure gets too high!

    Regards  David

  • The drugs companies should be ashamed. I understand they have to put lots of money into getting a drug fit for humans, but charing what they do is an outrage.

  • Hi Danny

    Ive just signed your petition, 393 sigs so far. I'll get my extended family to add theirs duing the week. Apparently it will save £100 million  and shorten the lives of thousands of people. Who takes the decision that giving someone else an extra few months life isnt worth a few grand. At the same time exactly £100 million was miraculously found to deal with a current crisis in the headlines. Lets hope that those who made this decision don't find themselves needing one of those drugs removed from the list. Kim
     

  • Hi Space

    One of my sons worked in research and he explained why some of these drugs are so expensive. Many of them dont have a mass market so all that money spent on research and trials has to be recouped from a small amount of sales. Apparently it takes up to 15 years to get a promising compound from test tube to market, most new drugs dont get that far, so those costs are also piled on to the drugs that do make it.! The cost is in tens of millions or more. Also the drugs can be very difficult to synthesise again with high cost of production. In order to keep costs down research has now been moved to India and China where graduates receive one tenth of the salary they would in UK. This has resulted in the loss of tens of thousands of skilled jobs here. My son now works at a stock brokers, glad of his analytical skills, but to my mind a waste of his talents which could have been used to develop new grounbreaking treatments. I agree the amount of money charged is obscene but I have tried to outline a few of the reasons why. Kim

  • Hi everyone,

    I have signed this as my brother in law may well lose one of the drugs he is one for his prostate cancer which has been sucessful in lowering his psa. I thought the cancer drugs fund was supposed to be a flagship policy for one of our political leaders.

    Thanks Kim for posting about your son not being able to work in his chosen proffesion. I think its scandelous especially after all the training he must have gone through to be become qualified. I do understand the development costs of new drugs and the time taken to ensure they work and dont cause side effects like thalidamide did. But as you so rightly point out, the powers that be can seen to find £100 million just like that.

    Lets hope they change their mind, Brian

  • Hi Brian

    Indeed one of the drugs under threat is for prostate cancer, probably chosen bacause of the large numbers of men who suffer from this common cancer rather than how effective it is. I hope everyone on this forum and their families and friends signs this petition. I too thought this fund was one of the key policies of a certain leader.  My son spent 6 years and £90,000 of his and my money and student loans to obtain his PHD. Plus the cost to the taxpayer, chemistry courses are very expensive to provide compared to say a history course. Yes what a loss to the country and himself. Kim

  • Danny thanks for raising this. Can everyone please keep to the point of this thread which is not about tuition fees its about saving lives by keeping precious drugs available  please above all sign the petition and then use the button on the same webpage to share with Facebook friends etc. Thank you. John

  • John, on this forum we do tend to veer off a subject now and then, because often the subject may be related or just of interest,  I think we all have the ability to sign the petition if we choose to, and discuss related topics at the same time.

  • Hi Pauline thanks for the feedback and maybe that did come across a !little harsh. However this particular thread is about signing a petition that had the potential to extend many lives by many years. So with no disrespect meant to you or anyone my only wish is to ask people to sign the petition while there is still time. Thank you