My Dad has advanced prostate cancer, metastatized to bone

Hello, 

I've come here because I'm not sure where else to go. I've just found out in the past week that my Dad has prostate cancer, which has metasised to his pubic bone. His PSA levels were extrremely high, 164, and his Gleason score is 10. He's 72, but you wouldn't think it. He is so fit and healthy and he only went to the doctors in the first place because he had a pain in his leg, which we now know is because it spread to his bone. I am an only child, I'm 26, I live near my parents and have been staying over since we find out. 

My Dad is mostly postive, he has started his hormone therapy and in July he will have 6 rounds of chemo. They can manage but they can't cure. They said it's really agressive cancer, but they can keep him going, but for how long? I can't bear to watch my Dad go through this pain, he's the kindest, sweetest most generous man. And my Mum, my Dad is my mums world, she just keeps asking me "how are we going to cope" - she's imagining herself all alone in this home they built together, and to be honest, so am I. I am trying to be strong and resume normality but this has changed everything. I thought my Dad would live to see me get married, go far in my career. I want him to be there, to watch me grow. I don't want him to leave Mum all alone. I don't have any siblings to share this with - my friends are supportive and my boyfriend too but, I just feel so hopeless. Would be reassured to hear of anyone else in the same boat.

Thank you

  • I am so heartbroken reading this, I lost my parents pre COVID and had dreadful experience with my dad in hospital, he went in terminally ill but capable, still trying to do his internet shopping, but after a few days in there went downhill, in pain still and unable to get our of bed, severely dehydrated I believe.

    I too still have severe guilt of taking him to hospital, but several years on I realise that it really should have been the best place, so I did my best.   A doctor said she wanted to stop treatment as he was 'taking up resources' as the nurses had to help turn him every 2 hours.  I was distraught as in his 80s he had worked since 16 and only been in that hospital a few days and never taken up their time before.   I don't think I will fully get over it.    Yes, treatment of 'geriatrics' as they call them can be appalling but just remember you did your best, we just aren't prepared for this.  I see so many cases in one particular hospital that I wouldn't now allow anyone I know to be taken there but that is with what I know now,not back then.

  • Thanks for your kind words Daisy. yes his consultant a Dr of Geriatric Medicine was one of the coldest uncaring people and enough to scare any patient to death.   Even she admited she did not know what was causing him to be able to stand up or get out of bed! Even my dad told me i think they are trying to kill me. No wonder he stopped taking his morphine.

     

    so much for the governments war on cancer. great video on brandnewtube about it by a now infamous DR!

     

     

  • I am really genuinely sad for your loss.

    you are more than correct and as I already believe the number of people dying due to non related covid but due to the covid restrictions will far outweigh covid deaths. 
    my Dad was during the first lockdown became unwell, he was regularly discharged being treated an issue not a cause, the rush to pack people put leaving empty wards was astonishing. A lack of diagnosis caused further admissions, on his own , unable to hear us over a telephone. Told on his own of a terminal diagnosis. 
    he told me things on the way home from one admission I will take to my grave , nobody passed anything onto me on discharge giving no reason to disbelieve what he told. An intelligent and until then active man written off. 
    He was I've no doubt. 
    My horror is the rest of my life questioning if I had only, what if I ? 
    failures where massive , unless of course you was admitted with covid. 

     

  • Hi there, 

    So sorry to hear about your Dad. I've been on the same journey since 2015 - Dad was given a year to live but still here and pretty active. Been through several chemo courses, hormone therapy, radiation.....he's had the works but he has a great mentality and humor gets us through a lot in the dark days. Manage but can't cure doesn't mean a death sentence, so stay positive lovely, treatments have come so far xxx