Father has Myelofibrosis

Hello. 

My father was recently diagnosed with Myelofibrosis. 

He only has a couple of the symptoms that are common with this disease.

They are;

Fatigue. He always feels very weak.

Shortness of breath.

He doesn’t have any pain associated with an enlarged spleen, nor does he get night sweats.

His heamoglobin levels were very low to the point where he needed a blood transfusion. He’s had two blood transfusions now but he says that after both of them. He doesn’t feel any better. Both times they didn’t even make much of a difference, he said he felt slightly better but not much better and judging by the way he looks, it doesn’t seem to have made much difference.

I thought that a blood transfusion would work and make him feel a lot better. 

I don’t know what I can do to help him? 

 

  • Hi Adore706 and welcome to the forum.

    I'm sorry to hear your dad's condition has worsened recently.

    Hopefully vbk365 will pop back when they can to let you know how they got on with their stem cell transplant but in the meantime I just wanted to share some information we have on our website about myelofibrosis and stem cell transplants.

    I hope this helps but if you have any other questions, you're welcome to give our team of cancer nurses a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they'll do all they can to help.

    Kind regards,

    Steph, Cancer Chat Moderator