hi all
some background information is that my mum was diagnosed with stage 4 lung cancer with brain metastasis in March this year. She has since then been on tarceva for a couple of months but is now off Tarceva as it did not show any improvements to her cancer in the brain which is what has the most symptoms. And now just taking steroids to reduce the effects (which are partial seizures, loss of control of the left side of the body, bad coordination and balance, delirium and confusion and incontinence, bed bound). After these symptoms she went to hospice but after 10 days at the hospice all of these symptoms have disappeared. I know this is the bittersweet magic of steroids because now she is back at home.
just a quick question for anyone who’s experienced or knows anything about what happens when someone comes off Dexamethasone for the last time if they’ve got metastatic lung cancer to the brain? And how long roughly the person deteriorates? I know it’ll be a really vague answer or reply but I’m just looking for anyone in a similar position?
im just wondering as my mum is gradually coming off them (for the last time) and I just want to know what to expect (i understand that people are different and have different experiences) but i’d Just like to see if anyone has any familiarities...
love to you all xxx
