Hi Laujust,

My 15 year old daughter also had the same problem, I posted about it too. She lost about 60% of her hair again. It happened during her last two chemo treatments during  maintanence. Once she was done with chemo the hair loss pretty much stopped but her hair was extremely weak which had. Even a tough situation for her since she wears hair extensions. The doctors had no answers for me. It's now been 5 months that she has been off chemo and it is definitely growing back again.  

Thank you very much for your answer Sukey. 

I really appreciate it was your daughters hair falling in chuncks or was it hair by hair? In my son situation this just started a few days ago it's just so hard for us since he is almost done with treatment with only a few months to go we were definitely not expecting hair loss now. I just don't understand he has been on the same medications and treatment all maintenance and nothing like this happend and when I read about it I see people say vincristine can cause hair loss but he's been on it since the beginning . 

Thank you so very much I cannot thank you enough for your answers. As you know this is a very difficult road for us parents needs less to say for them as well. 

You daughters  situation sounds a lot like my son, his doctor did say that vincristin can defenetly do that to your hair and he did say that he has seen it happen in other kids  were a few short month to finish treatment and they lose hair. With my son he has a lot  of hair and thick hair but I defenetly see the EXTREME shedding as you described. I'm just praying that it holds on for this few month he has left because it would be very hard explaining to a 5 year old that he will all the sodden loose his hair, specially with school it breakers my heart that other kids or people could look at him differently because of it.

I'm so sorry you are going through this. I know from experience how devastating it is. My daughters hair was growing back and started getting longer  and strong.  She was wearing hair extensions to make her hair longer and more natural. This past summer in her last two months of maintanence so much hair came out. She had bald spots everywhere. She is still wearing extensions but it's still a huge set back. She takes biotin and viviscal which help to strengthen her hair. After about a month or two off of maintanence her hair started getting stronger but for her it's like starting all over again. I know it's a hard age. She is in her second year of high school and it's been tough for her.  Have you talked twith your doctor about it? 

Im so sorry this happened to you. I don't understand why it happens to a small percentage of people. 

nah its fine but thank for being concerned and it is kind of devastating at first but after the radiation stuff and chemo I'm almost kinda used to the pain and I'm in maintenance phase now so phew goodbye though times. but now I have two problems 1st is being bald cause my hair is falling and 2nd that my cycle will repeat cause it relapsed (that I wish will never happen) I wish there's a solution for my first problem cause I'm a teen and having my prom next year which is in feb 2019 and cause my hair is falling yesterday. but does hair extensions really makes your hair look natural?? how about wigs does it look natural? if you ever bought a wig for your daughter how do you wear it if you're bald? and yes I've talked with my doctor with it when he first saw me and talked to me about my hair he immediately "said after two or three months it will fall again depends on how you take care of yourself" so yeah I'm just finding a way to help speed up my hair growth or while my hair is growing while I'm bald, to help me find a wig that fits and looks natural on me that never falls if there's a strong wind.

and I wish cancer will have a cure someday it would be a miracle if that happens and I'll pray for all who has cancer that their chemo is successful

Edit: thanks for the tips tho

Hello everyone,

Just read all the comments. My 4 year old daughter who is also on her maintenance suddenly started to react on vincristine. She never had problems with it before but this cycle she suddenly started to have leg pains, mouth pains and even constipation. And today I noticed that her hair suddenly started to fall again and it’s really stressful for a parent to go though it again. She being still so little don’t understand much but as she has started to go to school this may not be a nice experience for her. 

I just pray to god that she doesn’t loose all her hair. I read someone’s comment that you loose appetite while you loose your hair and I guess it’s right. So much is going on in their body that we don’t understand. Poor little kids.

praying for each one of you