Hi everyone.

Hi everyone. I don't really know how to write about a topic like this, I just felt I needed to talk to someone. I am pretty quiet and don't like to talk about feelings and worries etc., so I thought this forum would be a good way of trying to start talking about it.

3 weeks ago they found a tumour in my mum's brain. It was a primary tumour and she had her surgery last week and it went really well as they removed the tumour entirely. However, today we were told that it was high grade and uncurable and the consultant gave her 1 to 2 years.

It feels like a kick in the teeth. I am 21 and the youngest child and feel like im being protected. So when the tumour got removed I thought things could only get better. Now I am completely lost and scared and just don't know what to do. I have nothing to take my mind off it and I'm so anxious about whats going to happen to my mum that im starting to just act like nothing is wrong.

I'm sorry about posting the sob story. I love my mum and want her to be ok but I have no idea what to do or say.

Any advice would be great and thank you for letting me vent,

M

  • Hi Mike and welcome to the forum. I'm sorry to read about your mum's illness and prognosis. 

    Please don't feel you're posting a sob story - it's not like that at all - you've come to a place where we all understand the emotional aspects of the Cancer journey and can hopefully try and support you. 

    I'm glad your mum's surgery was successful, but it must be hard to now find out the results from the consultant. Remember that the doctors can only give estimates of timescales and some patients go on to live longer than the medical team indicate. 

     

     

     

  • Sorry, Mike, forum playing up and cut my response short. Will attempt to message you again soon, hugs Jo xx

  • Hi Jo,

    Just want to say thank you for replying to my thread especially considering you're going through so much yourself. I will be following your journey and wishing you the best and hopefully be able to give you some support as well. You seem to cope a lot better than I do though!

    My mum is so calm its almost scary. It seems strange that she is the one helping me when she is the one fighting this (It must be the teacher in her!). She's still somewhat recovering from the surgery and seems to enjoy peace and quiet more than being surrounded by everyone, but she told me, "Why worry about tomorrow? All it does is stop you living today." It gave me some comfort and positivity. She starts chemo and radiotherapy in 2 weeks so we go from there.

    Thank you again Jo, I hope the wooden signpost turns out ok!

    M
     

  • Hi Mike = wow things are tough right now - I would find it hard as well. Poor your mum and all of you. I bet you are in total shock at whaats happened to her. I will be praying for you all this evening. I do know its terrible - like a path you don't want to go down = and you have to! I found relief from mental anguish in my sports - I now run; but when it all hit - I used to cycle. I could put all my emotions into the sport - it did help sp much. I suppose we all find different ways of coping. 

    As Jo says = the doctors are very good and will do all they can to help. 

    all the best

    steven

  • Hi mike

    so sorry to hear that you and your family have recieved such devastating news.  Your mum sounds like a wonderful lady and from the sound of your posts you are a lovely young man and a credit to her! It's understandable that you are afraid, it's as if your world has been turned upside down.  You will find that there are times of normality and a detachment from what's happening as well as other times if sadness. I think it's our brains way of not giving us too much to bear.  Sometimes normality of everyday routine can be a blessing and can take your mind of things for abit.  

    Gaynor xxxx

  • Thank you Steven for the kind words and support. I actually play a lot of sports but haven't even attempted to do anything since she we found out about the tumour. Ill have to go to training next week and see if it helps me a bit. Thank you again Steven and you are both right, the doctors have been great. M
  • Hi Gaynor,

    Thanks for taking the time to respond and the kind words, espeically with you and your mum going through so much too. I'm going to try and get out of the house today and do something (on my mum's orders!) I hope your mum is doing well and wish you all the best!

    Thanks Again,

    M

  •  

    Hi Mike,

    Apologies for my short reply last time - my keypad was going a bit haywire (seems to be ok tonight - touch wood!) 

    I think it's quite common for the person with Cancer, to seemingly cope better than their families. I certainly seem to feel quite strong, emotionally when I'm discussing things with those closest to me. Maybe it's a protection mode - I'm not really sure. 

    I really like your mum's philosophical phrase too - a friend sent me a card with pretty much the same message on it and it's certainly something I try to live by (not always possible, but I'm getting better with practise.) 

    I hope your mum's recovery continues to go well and do let us know how your mum's chemo and radiotherapy sessions are going. Also let us know how you're doing too. How are your siblings coping? 

    Thanks for taking the time to read about me too - the signpost will be this weekend's project - let's just hope I don't end up in A and E with a DIY injury ;) 

    Take care and  Look after yourself. 

    Jo xx

     

     

     

     

  • Hi mike

    tried to respond earlier but it wouldn't let me....how did you get on going out today? So pleased to hear that you are thinking about returning to exercise, we all need time away from the difficulty! Not to mention all those feel good chemicals that exercise stimulates.  How's ur mum doing? It's difficult living in the shadow of cancer, but I'm trying not to let it take over everything, please try not to as well. 

    Take care

    x

  • Hi Jo Thanks again for the kind words and sorry for the late reply, I have been trying to ignore everything as best I can but with chemo and radiotherapy around the corner I'm starting to worry again. My brother and sister are coping well, we've just been taking it upon ourselves to spoil my mum every single day. My dad is coping OK, he is a doctor and has seen this all before so its not easy on him. How did the sign post go? I hope everything is well with you and your treatment continuous to be a successional Thanks M