My 16 year old son had his appendix removed on the 10th of October 2025 , two weeks later we were told abnormal cells were found and that he would need a CT scan and that his biopsy had been sent off for further testing .
(His appendix was stuck to lateral wall and leaking on removal).

In November we had an appointment with a Colorectal surgeon and was told that the first pathologist said it was LAMN and the second pathologist didn’t agree with the first saying the sample didn’t have enough mucin to fit LAMN and also said it was one of the most challenging cases he’d ever seen and couldn’t say what the cells were . 

The consultant decided to go with Pre-cancerous and said the biopsy would be sent off for further testing until they could determine what the cells were . (November 25)

The first week of January my son was feeling shaky and dizzy so my husband checked his blood pressure and heart rate, both were really high . 
Took him to the GP and the GP said it was because of what’s going on inside him . 
The high blood pressure and heart rate went on for weeks , resulting in my son being kept off school . 
Attended A+E because I was worried about my son’s blood pressure and heart rate , tests were done and then we were sent home . 

In the beginning of February he had a colonoscopy and a endoscopy, the consultant had previously said in November that biopsies would be collected during the procedures.

When we attended the appointment the nurses said no biopsies were taken , only photos and that the consultant just wanted to check nothing was there , tests were classed as normal. 
On the notes after procedure, we noticed that he was classed as patient case cancer and the reason for the test was because of reactive lymph nodes and an abnormality on Ct scan . 
On the 9th of February my son blacked out and collapsed, attended A+E and he had a CT scan on his head and then was sent home . 

A few days later in February I phoned the consultants secretary to ask if the consultant could do a letter for my sons school because of him being to unwell to attend school and the consultant refused because it wasn’t a surgical matter and the secretary also said my son would be getting referred elsewhere . 

So I had to contact the Gp to ask for my son’s notes to be printed off for the school . We noticed on his medical history that on the 11th of December 2025 that his third biopsy had said adenoma AND/OR adenocarcinoma .
We had not been told by the consultant about the third biopsy result even though I had phoned to consultant secretary multiple times for updates on biopsies. The secretary just kept on saying they’re waiting on results and that biopsies had been sent to Basingstoke and Cardiff . 

4 months later and we are still waiting, it’s been horrendous, the stress has been immense and we feel like we’ve been kept in the dark . 
The latest phone call to the secretary has resulted in us finally having a date for a meeting in Cardiff university hospital for only specialists on the 10th of March 2026 and then we will have answers and that he will be referred to the peritoneal unit. 
5 months since having his appendix removed and 4 and half months of us knowing something is wrong , it’s been absolute torture . 
I know what’s coming because my son is so unwell , before having his appendix removed he was a different person to what he is now , extremely fatigued, dizzy , sick and in pain . 
I’ve felt helpless with being able to help him . 

We haven’t seen the consultant since November, I understand it’s normal for appendix cancers to take a long time to diagnose, but I don’t agree with how we’ve been made to feel . 
hopefully we won’t have to wait much after the 10th to be seen , my son really needs answers to his questions:(