Hi Rish,

A very warm welcome to the forum.

This must be so hard for both of you. Your husband is probably trying to protect you by not telling you anything. Have you tried talking to him about how shut out you feel? He may think that he is protecting you, but he is wrong. It is so much easier when you are no longer dealing with the unknown and are aware of what is happening. Many people don't want to know any more and that is fair enough. He can still give his doctors permission to speak to you and they can then talk to you about his prognosis. If he doesn't agree to this, then there is nothing that his doctors can do, as he is protected by the Data Protection Act.

Do you have any family who could explain to him, how difficult you are finding all this and who could maybe persuade him to change his stance? It would be so much easier for him to go through this if you could both talk about it and support one another.

We are always here for you.

Kind regards,

Jolamine xx