Glioblastoma grade 4

My lovely 75 year old dad was diagnosed with glioblastoma last September after 6 months + of debilitating headaches and tiredness.

 

 He had 4 weeks worth of radiotherapy and chemotherapy which ended in November but has now said he doesn't want any more treatment because the effects of the treatment he has had have been awful - 6 months ago he was babysitting my 2 year old twice a week and today I had to help him put his shoes on and do his trousers up due to muscle weakness and the shakes.

 

 I've found it really difficult to get an answer out of his specialist team as to what his prognosis is. I'm finding the situation stressful enough but the not knowing what the future is going to look like is really hard. I also have a 7 week old baby at home so am dealing with the effects of being tired and emotional from that end.

 

Any experiences with this would be welcome.

  • Thank you. I get the side effects when I have my chemotherapy. I have the injection and then 10 days oral tablets. Brian plays up every now and again with stabbing pains but it only last a few seconds. Always look on the bright side as the hole is deep. I discovered that early on. 

    Focus on the next day. 

     

    John