Feel discriminated against

I am very confused and disappointed with my NHS. I have been diagnosed with a 9.2 x 8.5cm renal cell carcinoma with a few bilateral tiny lung Mets. Today I met the renal surgeon who has told me I am oo fat for surgery and until I loose 4/5 stone she will not operate. I have been referred to oncology and a dietician however I am very upset over her negativity and feel she has put a death sentenc on me. I am more than willing to loose weight and change my lifestyle to ensure my remaining kidney is healthy but this should not be at the cost of leaving me with a massive tumour that could poten ally become inoperable in the meantime. If I was in an accident and injured the kidney they would remove it as an emergency so why then will they not attempt to remove it when it would be life savin for me instead of making me feel ashamed for being overweight. I calorie count every meal and I’m over weight due to arthritis. Is this ethical in this day and age for a consultant to deny the treat nt when they’re are many bariatric procedures being carried out regularly. She told me I would die on the table with the pressure to the lungs and that the equipment was not long/big enough to opera . When asked about a posterior approach I was told they are not trained to excise the kidney posteriorly. I am willing to take the risk on the surgery as without it I will die and yet she still refu d stating she would not be in a hurry to book the theatre for me and would not do the procedure until the weight was off.

  • Hello and thank you for your post,

    I am sorry to learn of your situation and that you feel discriminated against this must be very difficult.

    Hopefully, you will feel more supported by the oncology department, and they can go through what treatment options are available to you.

    Treatment is planned depending on several things, such as the type of kidney cancer, the grade, (how fast-growing it is) the stage, (its size and how far it has spread), how well a person is generally, and whether or not they have other health conditions. The doctors will always weigh the benefits of treatment against the risks

    Surgery is the main treatment for kidney cancer that is just in the kidney or nearby lymph nodes. Depending on the situation, it may be recommended if the cancer has spread to another part of the body to slow down the growth of the cancer however, other treatments may be offered instead such as targeted or immunotherapy therapy. This will be what the oncologist will discuss with you.

    I wondered if you had thought about getting a second opinion from another renal surgeon, this might help clarify your situation and whether or not surgery could be an option.

    I am sorry to read that you feel let down by the NHS, especially at such a difficult time. If you did want to make a complaint you could speak with the Patient Advice and Liaison Service (PALS) at your hospital and they would be able to talk through their complaints procedures. You can read more about how to complain about the NHS on the NHS website.

    I hope this helps a little. Feel free to get back to us if you need more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care, all the best,

    Jemma

  • Hi

    Thank you for your kinds words. I have asked for a second opinion and requested it is from an alternative board. I work in healthcare myself and was completely shocked at how my husband was spoken to. He already has very low self esteem and we had discussed a lot of what he would need to do prior to this appointment. I should have a response from the complaints officer over the next 10 days. We are hoping oncology will be a better experience. 
    Thank you  ️
    Gwen