my husband had a robotic radical cystectomy 8 days ago and he has bleeding from his penis. Has anyone had this and how long did it last
from sylvia
my husband had a robotic radical cystectomy 8 days ago and he has bleeding from his penis. Has anyone had this and how long did it last
from sylvia
many congrats to you., health wealth and happiness to you and all on here for 2023. I for one will be glad to see the back end of 2022. It has been the worst year of our marriage. But we got through it thanks to th NHS and those wonderful people who save lifes and look after us We wont be having a tree up this year but where not bothered. The tree is up in the loft and Ronnie cant get up there and i certainty cant. We have no family just him and me. I will stay on here and let everyone how my Ronnie gets on with his recovery. All th bst
Sylvia xx
where having a problem with the night bag because they didn't have a night bag stand we are having to put the night bag in a mop bucket but the urine is going into the bucket and not the night bag in the bucket. I am wondering if the valve isn't closed where the urine is supposed to come Ronnie sad it is shut . The stoma nurse just phoned and i told her about it and she said she would order him a stand and have some more night bags delivered and phone back tomorrow. Some good that will do. She said the outlet is not shut tightly or it's a faulty batch ? Whats your thoughts on that.Susie
From Sylvia
Hi sorry that your having trouble the outlet valve could be open, it's easy to slide shut, lt sounds like the urine running through the bag its a shame the ward didn't give you a run through of the night bag before you came home. It will help when you have th night bag stand, but the bucket seems a good stopgap.
The district nurses will be able to help , l would ring the doctors surgery explain what's happening and ask for a visit. A phone call from the stoma nurse is not much help
take care l hope this helps if not ring 111 and ask for soon assistance as they can contact your doctor for you.
susie
Stoma nurse called yesterday to check Ronnies stoma IE Fred and changed him. She left some better night bags with no connecter much better that the hospitals. There coming again next week. So all is good at the moment thanks for the advice
From Sylvia
Glad you're ok hope they work better than the other bags
lts a shame to have been sent home without the equipment you needed
take care
susie
I must admit i felt like takeing a photo of Ronnie in bed showing his night bag stuck in a mop bucket and sending it to the local paper. Then i think of the surgan that saved Ronnies life and i thought better of it.
From Sylvia
Ronnies going for a CT scan with dye on his stoma and then if all OK he will be getting his stents out. I was a bit worried about Ronnie walking a long way to 2 separate clinics but they said he will get a wheel chair and a porter so i am happy about that. It will be a nice change of senary for him he's getting a bit fedup of been in the house. He might change his mind when he see's how cold it is.
Sylvia
Hi wrap Ronnie up well with gloves and scarf the outside air is cold but it's usually really warm in the hospital. Is he going by hospital transport or a car? Our nephew drives an outpatient ambulance he says he enjoys his work now, it's much nicer than his previous job lugging sofas around delivering for Argos.
Hope all goes well
susie
Yes we got a taxi to the hospital and my niece brought us home. They said he was ok with the CT dye scan and he has had his stents out and a injection in his rear for infection. He hasn't been eating very much and this afternoon after lunch he was sick 3 times. He is on a mixture of iron tabs and antibiotics x asprin and statin and i am wondering if the tab s are making him sick because he isn't eating much. Getting a bit worried.
Sylvia
If the antibiotic is nitrofumantin it made my husband very very sick x