Surgery and chemo but in what order all depends on whether I’m Her 2 positive or negative. 

Hopefully you will get your appointment soon,   Not knowing is so hard.

xx

Got my results, stage 2 invasive ductal carcinoma. Awaiting a CT, Bone, MRI and muga scan. Then for chemo and surgery. Feeling a bit overwhelmed by it all. 

How are you guys doing? Xx

Sorry to hear your news. Is that stage 2 or grade 2? I assume also that it's in nodes too for other tests to be necessary? I saw my surgeon today and got CT scan results showing all clear except a small  something on liver but they think is just a benign haemangioma but want to MRI to be sure. Surgery for full mastectomy and axillary node clearance this wednesday, MRI for liver will be when I have recovered enough  in 2-3 weeks. Just want to get on with it all now.

Hope all tests go well. 

Jo

Did they tell you if hormone receptor positive or HER2?

waiting on the results of a fish test (HER2 equivacol), apparently that will decide if I get 1 or 2 drugs. Grade 2. They said my nodes appeared clear but need MRI as I’m young and mammogram may miss things due to dense breast tissue. The muga scan is to make sure my heart is in good condition and chemo doesn’t cause irreversible damage. I haven’t met oncologist yet, still awaiting that appt. feels like a waiting game. Just want to get going now! 

You will be glad when wed is over xx

Hi Both

Good to hear things are moving forward - each procedure is one step forward to recovery.

Jo, I hope Wednesday goes well.  I’ll be thinking of you.

izzysmom,  good that you have a diagnosis.  I had mri as my mammogram didn’t show anything.

My Ct scan was clear and Her 2 was negative  but mri has shown another suspect area so I am having another ultrasound and possible biopsy on Thursday.   I feel like I’m going around in circles.   Xx

I had an MRI as mammogram only showed small patch but ultrasound more. Not been told I need a muga test?  What damage does chemo do to heart?

I'm surprised they will do CT and bone scans if they don't think spread to nodes as thought they kept radiation to a minimum.

I'm not meeting oncologist until after surgery and histology and liver MRI results are back so probably 5-6 weeks I would guess. 

Hope the hormone tests come back with good results.

I had never heard of the muga but it was my breast nurse specialist who explained that it’s to make sure I can go through chemo and my heart can cope. They said the other scans were standard? Now I’m starting to worry. They checked nodes in ultrasound but said they were fine. He said it was a small lump.  

It really is very confusing, probably even more so as I’m still waiting to see oncologist. I feel I have been taken in, given some sort of result and pushed back out to wait. I don’t even know if it’s HER2 pos or neg yet. 

I have also been referred to genetics. 

Im not going to lie, it feels like I am trapped in some sort of a nightmare! 

He said it would be a lumpectomy after chemo, I asked why not surgery first, but his answer wasn’t very clear. It’s 4-6 months of chemo which the nurse said would be 3 weekly for 6 sessions. I will get re scanned at 3rd session and see the surgeon at after 5th session xx

Izzysmom - I had to have my HER2 result rechecked as it came back inconclusive.    My consultant told me if it was postive they would do chemo/herceptin first as it shrinks the lump and then surgery.  If it was negative they will likely remove the lump and then Chemo.   I feel that same as you that I'm trapped in a nightmare;  never ending circle of tests with one thing leading to another test all the time.  My worry is that if there is something else and they do a biopsy that delays things further waiting on results of that and HER2 test again too. 

Jo - they mentioned a lumpectomy but that may change if they find more on Thursday I guess.   I will think the same way as you if they do find more and opt for mastectomy if they recommended.    

It's the only time in my life I have wished to press a fast forward button.   Xxx