Waiting for Scans

Hello. I am currently worried sick waiting to have a bone scan and an abdominal scan next week. I had stage 2 breast cancer 10 years ago and had a lumpectomy, full lymph node removal in left arm, chemo, radiotherapy. I have recently been having aches and pains all over my body, even my fingers and toes sometimes! They usually keep me up at night and seem to be getting more regular than they were. My GP did numerous blood tests,and my alkaline phosphate results were high. This indicates either liver or bone conditions, including tumours, however if its bone cancer then my calcium levels should be high, which they are not. Im so worried and cant concentrate on work, my social life or sleep. Has anyone else experienced these symptoms? Im expecting the worst to be honest. My consultant did a calculation when I was first diagnosed (not sure if they do this now?) and said my prognosis would be 10 years...which is will be in August! Im so tearful and stressed but I cant show this to my family as I dont want them to be worried too.

  • Hi Chrissy. Sorry for late reply and sorry to hear you are having a difficult time. I hope your daughter gets the help she needs for her pain as it must be awful for you to be worrying about her as well as trying to keep positive despite your own health worries.  It's not right you have to wait until January! I would be insisting you get some answers before then! I find the whole experience around treatments and appointments just so chaotic and disorganised. There just doesn't seem to be enough staff to cope yet there are always staff just wandering around and doing nothing but having a chat! Every time I go to the hospital there is always some problem of one thing or another. My sister and I always have a bet before we go as to what will go wrong that day! I wont go into details as it will probably be removed!! I'm doing ok but like you get very tired. I hope you get your diagnosis confirmed asap then you will be able to move on. Try to have a relaxing time over christmas and dont do too much either! Take care x

  • Hi Bonney63

    How are you? I started palbo and letrozole - 3rd day of combo today (very new) + ovarian suppression jabs every 4 weeks.  All a bit of a blur tbh...given all clear in April 19 and by 23rd December '19 I was informed I was stage IV BC.. you can imagine my horror thinking my time is up but not feeling unwell at all...does not make sense!!  
     

    Chronic illness you say..... interesting. Dr.Google is driving me nuts... but just can't help googling! This is my first ever post - look forward to hearing from you!

    Regards

  • Hi bonney63

    I know it's been a very long time but I was wondering how you are.? I went back to work April 19 and then my daughter has been poorly for well over a year. Been wondering how you are getting on .

    take care 

    chrissy xx