Hi [@Songbird68]‍ 

Sorry, had to jump in on this one...a bit nosey of me but is it gluten that you have the issue with? 

Only asking as I have two daughters officially diagnosed as coeliac and I have a few food intolerances too so it's a particular interest of mine :silly:

Hope to hear some good news re Lenny soon :love:

That's great news [@Plumlet]‍ - it must be such a relief. I know you still have a lot going on but glad there's one less thing to worry about now.

Hi [@Plumlet]‍ 

Very happy with your Mum's news today. It's one less worry - and means you can focus on getting you through this!

In answer to your question - yes I do have gluten intolerance, also oats, and monosodium glutamate. It's the MSG that got me this time though as the others are always marked in BOLD and I didn't have my glasses on! Serves me right! I have to be careful with dairy and soya too. MSG is a real killer for me though, the pain is unreal and I just have to ride with it till it works it's way through.

Doesn't look like I am going to get my biopsy results anytime soon. I am guessing it's nothing they deem as 'worrying' - but I am still curious why I was not called back last week as the admin lady promised to do. I called again today and spoke to another lady who I can only describe as more mature and a little stiff. She told me yes my results were in, but my file was not in the pile and probably in the library (I am a book and I didn't know it), that again the results have not been commented on by the consultant. I asked if she could tell me anything, she said no , it was in medical language and needed translated into laymans terms. She said a report will be sent to me and the GP in time. She said she would print off a copy of my report and put it in the consultants tray. No time scale given to tell me, and to be honest I can see me still pondering the situation in another 2 weeks! This has just been an absolute nightmare! 

Hope you are feeling OK today - hugs xxx

Oh my gosh Songird they're making it so complicated - sounds like everything has been done with your results other than telling you what they are. Sorry don't mean to be flippant - it must be so exasperarating - it's just surreal now.

Hi [@Crow_]‍ 

I am so glad that you have your results appointment. This doing tests then leaving you hanging just stinks! I wouldn't have cared if they had said - OK we will give you a ring in 5 weeks and tell you your results - then I would be a lot more settled. 

I will leave it another 2 weeks tops and if I have no word by then, I will call again, if still no joy I will just have to go to PALS - hopefully it won't get to that.

Let me know how things go Wednesday - it's not long now xx

H‍i [@Crow_]‍  yes very relieved...just need to work out how to tell my parents what's going on with me.

In the meantime I will be keeping everything crossed for you tomorrow! x

Hi [@Songbird68]‍ 

I'm always grateful for one less thing to worry about! I'm glad my Mum doesn't have to go through it all again.

Ah you have my sympathy then.

Quite a lot of GF products have soya in and I was very sick when I tried some GF crackers and narrowed it down to the Soya Bran after having the same reaction to some biscuits. 

Even before the dietary changes I've been making most food from scratch so it's only the processed snacks , bread and pre-made foods that I have to be careful with and of course eating out is challenging. 

I do miss a lovely hot ring doughnut...and pastries from time to time but I definitely had my fair share of them pre-GF so I shouldn't feel so hard done by :laugh:

It's not on that you're left in limbo like this, it also amazes me that they can't just tell you the medical terms and then you could ask your GP to explain...or just look it up yourself. Their lack of urgency does imply that nothing malignant was found , however , we all know too well that one must not make assumtions, especially where biopsies are concerned....that's the whole point of them, to get clarity.

I make you right that if they told you a timescale...even a long one that you could "park" the worry on the back burner so to speak. Frustrating is an understatement. Keep pushing.

Although my head seems to have accepted what's going on there seems to be some disconnect somewhere as I have been blindsided by panic attacks every day since Saturday. Luckily I have had these before so I recognised what was happening the first time and just had to ride it out. I wasn't even thinking anything bad, which is a usual trigger....it's just sneaking up on me :confused:

Lets see what today holds...xxx

Hi [@Plumlet]‍ 

I am not suprised by you having panic attacks considering. You really need to tell your parents, that will be difficult and you'll all shed some tears I'm sure, but I think it will help. Sometimes when you try to hold back really serious news to try and protect others, it burrows deep inside and comes out in panic.

I had to have a full hysterectomy a few years back, so I know what that worry feels like. You need all the love and support you can get from the people who know you best. I found forums like this helped too as I could let off steam and ask tons of questions. I can't help you with questions on breast cancer from myself personally though, I could however tattoo a contour map of Europe on my stomach from my previous battle scars! I have a few very dear friends who have been down the same road, and they are still here very much to tell the tale. xx

Hi [@Crow_]‍ 

I hope you are relaxing as best you can for tomorrow. In my world that usually means my favourite food, then a nice bubbly bubble bath followed by a hot chocolate listening to my most chilled out music, then bed! (In reality I usually get bothered by at least one cat somewhere down the line or my hubby asking what I'm blasting my ears with!).  

Please let me know how you get on xx