Waiting for op

Stage 1 invasive breast cancer and I am due lumpectomy and sentinel node biopsy in 3 weeks. After original breast biopsy my breast has felt sore/itchy/burning Is this normal? I am worried that tumour is having a growth spurt ! ( 9mm) on ultrasound. Feeling stressed

  • Hi how you doing, have you a date for your injection into breast  before surgery? 

    I nor mum took hrt so it does make you question the research. I'm not looking forward to having to take medication after treatment though for 5 years some of the side effects aren't nice. 

    My energy levels are still low I'm so glad my consultant signed me off for 3 weeks I would of struggled. 

    Louise xx

  • Yep, all OK here.

    My energy levels are so low too. Think its more mental tiredness than anything else.

    You should be getting your treatment results soon. 12th May? It doesnt sound a long time to wait, but I am sure it feels like forever.

    I am having the breast injections on the day of surgery. Apparently, I go in first thing to hospital and they take me over to the mammogram bit and insert the guide wires and wot nots. I have been warned that I will turn an unflattering shade of blue.!

    Then I am taken back to the ward and given anasthetic before op. Depending on what the dye shows i may have several, or quite a few lymph nodes removed at the same time as the tumour. I have told the surgeon I would rather have a full masectomy than chemo, I guess I will find out how much boob and lymph nodes I have when I wake up.

    The fact that we both have the hormone positive receptors gives me lots of hope that we can avoid chemo. I find my mood is swinging wildly from Its all ok, everything is fine.... to... AAAAAAAGGGGHHH!

    No wonder I am so bloody tired.

    I am not too worried about the op. Its necessary and has to be done, but I must admit I am not looking forward to the wires and stuff beforehand. I was fine with the original biopsy. Think I was in a state of shock, but perhaps because now I know whats coming.....

    How are you feeling? Still very sore and how are your "electric shocks"?

    Sending big hugs xxxx

  • Morning

    Yep D day is 12th and I'm on the count down, my nerves are getting fraid now with the fear of what's next. What date is your op?

    I had my injection day before surgery was like a scene from a Sci fi pathologist came in with his small metal cachet and explained what it's for etc and that it would feel like bee sting. Out came my syringe had to turn away couldn't watch needle going in next to nipple.

    When I looked at my breast that night I could see a dent but it's now gone and only difference is due to swelling its firmer so sits slightly more pert. I took the steri strips off both wounds yesterday and all is good.

    The electric shocks are not as intense now and it's moved thankfully as its very unpleasant but I suppose at least I know the nerves are working. 

    I totally get about your mood it's so weird It still sounds like I'm discussing someone else it's all so surreal. But we've got this, together we will give each other the strength to fight. 

    Keep smiling 

    Xxxxx

  • Hiya,

    Yes isnt it strange that we feel like we are talking about somebody else. I had a bit of a reality check last night and thought ***, this is actually me !

    My op. is on 24th May, so from the 14th I have to self isolate. That is not going to be much fun. Keep telling myself I will catch up on all the stuff around the house that I have been meaning to do for ages, but my concentration just keeps wandering off.

    It sounds like you are healing quite well after the surgery. Are the wounds better or worse than you thought they would be?

    I think I might put a post it note on my boob before general anasthetic telling the surgeon to watch what he is doing.....might give him a giggle !

    Big hugs xxx

  • Hi

    Weird isn't it that different areas have different covid guidelines. I had my test on the Saturday afternoon and had op on the Wednesday, although I had to go to the hospital for my injection on the Tuesday. They really don't take in to account work, family etc. I did a few jobs id been putting off but didn't stress they'll get done eventually lol.

    The wounds look good id say both are about 2 inches didn't really know what to expect but I'm happy with them. The electric shock has reduced loads now I get a weird sensation from nipple across to underarm. It's hard to explain but isn't very pleasant I'm assuming it's just all nerves. 

    My surgeon drew an arrow just above the breast was funny as it got checked so many times it was like a peep show.

    Hopefully the weather will be good when your isolating that will help lift your mood getting some sun. 

    Louise xx

     

  • Hiya,

    Nothing really new here. Still a case of "Hurry up and wait" !

    Must be worse for you. Are you managing to do or think of much else? It is so close now, must be an agonizing wait. I keep thinking...she is hormone positive, its all good. It WILL be

    .I just know.

    Mostly I feel fine, but i really need to tell that to my brain, because it seems to be on strike at the moment. Its funny as for the past couple of years I have been trying to learn spanish. Mainly to keep the ageing grey matter in shape. Tt wasnt really working before, but now, I cant string a sentence together in flipping english !

    How are you doing with your health in general? Have you been trying to make more of an effort or just feel like sod it !

    I am a firm believer in our mental health affects our physical health and with that in mind its particularly important to find something to have a giggle about.

    I am thinking if I do end up having a masectomy, I will have a daisy tattooed (cant spell, sorry) in place of my boob because if there aint a boob there, the daisy cant end up on my knees in a few years time.   There is always a positive !

    Hugs as usual 

    xxxx

  • Hey 

    Don't the days drag when your waiting for something. I had a bad night Friday lot of tears. Thinking of my mum and why me. Bad enough I have severe osteoarthritis but to then get hit with this just got all to much.

    I'm the same with the concentration lol I love jigsaw puzzles and have one I thought would complete in the 3 weeks I've been off. I think I spent an hour and thats it. I'm sure it's totally normal that we are struggling.

    Like the idea of the daisy tattoo, but I'm sure it won't be needed we will just need radiotherapy. 

    I did give myself a talking too and have managed to lose a bit of weight I'm not standing on scales as numbers are to daunting but pair jeans I struggled to to do up now zip up easy. My daughter and I are doing one of those walking challenges and now I'm back on my naproxen I can go bit farther and even take the dogs I just have to be careful and take a wide berth if I see people so there is no pulling. 

    Currently sat in garden just done bit of pottering, makes you feel so much better being outside in the warm after yesterday's awful day. 

    Take care 

    Louise xx 

  • Its my turn to have a wobble today !

    When I was first told I would need surgery in mid April, there was absolutely nothing to feel. I couldnt feel anything and neither could my consultant. Now I can definitely feel a lump. I have had a little discomfort from when the biopsy was performed early April and I am hoping that it is a bit of the reaction to that, but i doubt it.

    Typically, I only noticed after 530 when breast care team have gone home.

    I will be on the phone first thing in the morning !

    Also, were you told the growth rate percentage of your lump? I was told 12% but dont know if that is good, bad or indifferent.

    A day closer for you. Hang on in there xxxxx

  • Hey

    sorry to hear your not having good day hopefully it will be related to the biopsy. Can you call and leave a message? My clinic the phone line is there the whole time and someone will call you back ASAP.

    I know what you mean tho everything bad will be going through your head its natural. 

    I'm trying to stay positive for Wednesday but its so hard. I'm struggling with bra discomfort now one boob is different shaped I'm just not comfortable. Such a bloody nightmare eh. 

    I'm here for you. I've sent friend request not sure how that works though.

    Xxx