New mastectomy yesterday

Hi I have just have a left side mastectomy and am still in hospital, My sentinel node was clear I am waiting to go home. I don’t know how i feel apart from scared.

I get the next steps on Nov 10th at my follow up appointment.

my consultant used glue only on the op so my wound is not covered at all. Has anyone else had this done please and what issues should I look out for .

is this better that having drains .

  • Hi Jolamine,

    Yes- the lack of sleep is due to discomfort, so hopefully it will soon improve. Last night was just as bad, so im really tired and hoping I will get more sleep tonight, also, I have to get up earlier for work tomorrow, so I need to feel refreshed for the day ahead,

    I’m a teacher and my work doesn’t involve any heavy lifting, so that’s a good thing, I don’t want any more issues to deal with.

    xx

  • Hi GoonerGirl,

    I'm glad to hear that you won't have any heavy lifting to do t work. I sincerely hope that you manage a better night's sleep tonight. Does your early start in the morning mean that you are going into work again and not just working online? It won't be long until you get your results on Monday and I'm sure that your desperate to find out exactly what you're up against.

    I hope that all goes ok tomorrow.

    Kind regards,

    Jolamine xx

  • Hi Goonergirl 

    sleep deprivation is just horrid and healing is aided by sleep. We all have little rituals that help mine is a small night light that seems to help me relax it takes a bit of searching for what helps but also a drink at bed time helps . Routine a bit like a baby’s . Sorry if I’m preaching to the converted . And never looking at the clock as this trains our brain to wake at a certain time . Please  take care of yourself be kind to yourself. Monday will be here soon and I have everything crossed for you that you get the results and a plan that you will move forward with . Stay strong and we can both do this xxx

  • Hi Jolamine,

    Yes- the early start meant I am going into work rather than working online this morning. My work is a mixture of the two anyway- some face-to-fact teaching and some online, so I’m back home later this afternoon for an online lesson. Next week the madness of a ‘normal’ week starts again for me. Thankfully everyone has been very understanding of my absences due to both surgery and appointments. 
    I have. Iced feelings about Monday- I am starting to feel a little anxious about the results- but I’d rather know what I’m dealing with xx

  • Hi JLD,

    Yes- sleep deprivation is horrible, and it’s something I’ve always struggled with. I’ve been trying different things to help- last night I had a bath during the evening and then relaxed in my pyjamas. The thing I’m struggling with most is discomfort from my scar/wound. I just can’t get in a position that’s both comfortable and allows me to sleep. Until a few nights ago I was sleeping in my bra as I thought that was more comfortable. Then I found I was better without. Now I’m thinking I’ll try back in the bra tonight to see if that helps! I suppose it’s just different stages of the healing process. 
    How are you getting on? xxx

  • Hello there yes I’m very much like you. Different bras and on off . I find I’m having stabbing pain a lot and fluid build up as the day goes on . I had my scar glued so no drain. As soon as I do anything g much it swells more. My best sleeping position is making an arm chair back with pillows in bed and having the heart pillow under my arm.  I’m very apprehensive re tomorrow but like you need to know and have a plan moving forward . My cancer is hormone responsive and the last test result tomorrow is the HERS 2 I try not to read stuff as it’s so confusing and I’m prone to catastrophising.  Don’t over do it I have and it sets you back . Xx

  • I did have a drain but it was taken out after 3 days, which was a relief to be honest. I feel most comfortable in bed when I’m in the position you described, but I just can’t sleep like that. I’m sure things will improve- I’m just being impatient!

    I was told my cancer is hormone responsive but HER negative after my first biopsies. However, they said I may need chemo depending on the size of the cancer and the lymph node (which looked clear on ultrasound). It will be a big relief if I don’t need it, but I’m feeling a little more prepared for if I do now, having done some reading etc. 

    I really hope all goes well for you tomorrow xx

  • Thank you.I to am hoping for no chemo just radiotherapy and tablets 

  • HI GoonerGirl,

    You will definitely feel better once you know exactly what you are dealing with. It doesn't sound as if you'll need chemo, with your lymph nodes being clear so far and I'm sincerely hoping that this will still be the case on Monday. Do you have a small heart shaped cushion to put under your arm at night? I found this very useful. I hope that your work this morning went well and that you won't be too exhausted by the time that you finish today. You are brave to be going back to working a 'normal' week so soon. As I said before, don't overdo things, as this can set you back further in the long run.

    Kind regards,

    Jolamine xx

  • Hi JLD,

    how did you get on today? I’ve been thinking of you xx