Oesophageal Cancer

Hello there

My husband was diagnosed on 2 October with a tumour just above the stomach. He was 72, very fit and has never smoked or had acid reflux. He hardly drinks alcohol. At first the doctor mentioned an operation but subsequent tests showed the cancer is in the lymph nodes so he was offered chemotherapy.

He had oxaliplatin by infusion and capecitabine tablets but could not tolerate the nausea. He couldn't eat or keep water down and spent five days in hospital. The second chemo was Folfox and is intended to be six cycles of two weeks. Oxaliplatin by infusion and a pump for 46 hours. He has a PICC line in his arm. This second cycle caused ulcerated mouth and thrush and again he couldn't eat and spent five days in hospital. The next chemo was delayed for two weeks as he had zero white cell count. On Friday he had another infusion and pump and so far is fine. They reduced the chemo to 80% and we are hoping this will mean the side effects are easier but we also have lots of mouth medicine if the ulcers start again. Fingers crossed.

 

My husband has lost his hair and it surprised my how aging that was. He wears a bandana in the house and a beanie when we go out. That means he looks like himself but thinner as he has lost weight. The chemo must have shrunk the tumour as he is able to eat almost normally at present.

 

I am wondering if there are people going through the same experience or have been recently. What can we expect was the chemo goes on? Does it get easier?

 

 

  • Good luck - I hope the chemo has a positive effect.

    Best wishes

    Dave

  • My husband has the same it gets easier when chemo stops and your not going to hospital all the time just take it a day at a time enjoy simple things like having tea togety or watching TV or just chatting cancer takes over everything if you let it discuss it then leave it to one side and get on with living x

  • Hi,

    my husband was also diagnosed in October with advanced stomach cancer, he’s been offered chemo oxaliplatin and capecitabine, but he’s been really poorly, he cannot eat or drink and his diabetes is up and down we have spent last 6 weeks in & out of hospital and he has not yet managed the tablets, he’s due his 3rd cycle next week but is too weak to have it, I am not sure what or where we go from here.

  • That is sad and I feel for you. This illness takes over our lives doesn't it and I expect diabetes complicates everything. Perhaps they will reduce the chemo dose for your husband as they have for mine - it seems to make the side effects easier to tolerate. He did have four weeks between cycles two and three. It is awful when they are unable to eat and drink. They need to build up strength to fight the illness.

    I hope your husband starts to feel better with a break from chemo and you get to spend some enjoyable time together.

     

     

  • Thankyou for your response, yes it has certanly taken over our lives, he is only 52 and we thought he would be fit enough but the chemo has really taking it out of him, but, its giving me positive thoughts knowing he may be able to delay for a week or so or even talk about changing his chemo dose.

    I hope he improves for us to enjoy some happy times instead of pain and suffering.

     

     

  • Hi there

    My husband has been told he will have six two week chemo cycles and then a scan to see if it is working. If so, then another six cycles. Then what happens? This week's chemo number four has been postponed as he is anaemic and needs a blood transfusion. Impossible to plan anything.

     

    What does the future hold?

  • Hi there

    Wondering how things are with you?

     

  • Hi Ronnie

    Hi just thought I’d pop in and see how you’re doing. It’s hard for everyone concerned. Thank goodness for being able to come here and chat with others whose lives are affected by this disease. 

    I read your posts. You’re all going through so much but supporting each other. Sometimes I’m unsure if I’m saying or doing the right things. 

    I honestly wish you well and pray the treatments go ok

    with love

    Kuiper 

  • Hi no one knows the future we found being positive helps taking it a day at a time be honest about how you are feeling always hope for the best Dr not always accurate on prognosis hubby given 6/12 months a year ago still here after 13 months chemo shrunk tumors and 4 stents fitted to help with eating stay strong x

  • Hello there

    Do you manage to go out together? My husband is too tired to walk the dog with me, although I am hoping he may have more energy after his blood transfusion tomorrow. We both really miss eating out . He says nothing tastes of anything and I worry about coughs & colds while his immune system is so low. We have been to the cinema a couple of times. 

    Not sure about the stents. Do you mean it has been replaced three times? How is that done - Under anaesthetic? We haven't heard of that yet. Is it uncomfortable or painful? We have a lot to learn it seems.