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30,624 Views 108 Replies Last post: Jan 6, 2011 1:31 PM by strongbow RSS 1 2 3 ... 8 Previous Next
86 posts since
Mar 18, 2010
Currently Being Moderated

Nov 27, 2010 9:53 AM

my Dad has prostate cancer

Hi have just found this site, don,t know where to start really. My Dad wsa diagnosed with prostate cancer about 2.1/2 years ago.Firstly he went through the hormone injections in the stomach and was then moved on to chemo.His last dose was on new years eve and then he was told it was being stopped because it wasn,t working.Before I continue sorry I should say my dad is 75 years old and has always been very active, he was a dj believe it or not although not in the modern sense he dj,d for sequence dancing events. He also enjoyed regular holidays and had a wonderful garden which was his pride and joy. Anyway back to the facts.He continued being very active all through the hormone treatment and into his chemo until last May when he tripped over coming in from the garden and broke his neck. He was sent home from hospital several times being told he had whiplash. To cut a very long story short he ended up finally in hospital awaiting an operation on his neck as he had broken the top 3 vertebrae in his neck.He had been reduced to someone who could hardly move couldn,t lift his head up and was drinking through a straw. The morning of the operation he woke up to find himself paralized.He underwent an 8 hour operation where his top 3 vertebrae were bound together with steel rope and his head re bolted to them.He underwent the operation awake as the doctors had to test his reflexes.He now has minimum head movement, had to learn to walk again and has limited arm movement.The reason his neck was so brittle was because the cancer had spread to his bones including his spine. So he still stays positive through all of this carrys on with the chemo and tries to carry on as normal.Then the chemo is stopped in January and for the first time ever he starts to get a bit down.Then he starts to have problems in the water works department.Again to cut a very long story short today he has had a nephrostomy tube fitted to his left kidney and a drainage bag.i have had limited information all through this as I live too far away to be at his appointments and since his broken neck my dad has become very confused, he was not like that before.I had a phone call tonight from his doctor what a miracle and he told me that my dads prostate cancer is advanced and that his right kidney is not functioning at all now and that they have operated today to save his left one. Once this is all sorted they can then go back to sorting out what treatment they can give him for his prostate cancer.Although I have family involved in this they are step sisters and brothers that I have never been close to and they to me and I have not had one phone call from any one of them who have been on my dads hospital visits. I feel glad today that I have at last spoken to a doctor who has been able to make things a little clearer for me. I ring my dad every day and love him very much.Just sending this has made me feel better, if anyone has any thoughts or experiences of this type of thing I would welome your comments, thanks for listeneing! xx

2 posts since
Mar 22, 2010
Currently Being Moderated
1. Mar 22, 2010 11:00 AM in response to: strongbow
Re: my Dad has prostate cancer

my dad has the same kind of cancer as well and is having hormones and other treatment,,he was diagnosed last year ,the day before i found out i was having my little boy,,hes just recently caught a severe stomach bug which is worse because his immune system is low,,my mum is like wonderwoman trying to be strong and do everything for him,,me and my other family have been told not to see him because his bug is really catching,,he just phoned me but he sounded soo very weak but tried to sound ok,,i knew he was getting upset  when we finished talking  and now i cant stop crying,,im sure he will be over the bug in a few days like the doctor said but im so scared,,i wish you luck,,it has also made me feel a bit better just writing this,,thanks

2 posts since
Mar 22, 2010
Currently Being Moderated
3. Mar 22, 2010 9:17 PM in response to: strongbow
Re: my Dad has prostate cancer

hiya thanks,

hes 65 and mostly doing really well,,we are all coping brilliantly90 percent of the time,it was just when i spoke to him earlier that it hit home,,my mum is amazing she organises everything and takes in what the doctors say and gives him his pills and morphine,without her wed fall apart i think,shes the one that we all thaught wouldnt cope,,im feeling a lot better tonight and mum spoke to the doctors who say shes doing everything right and they moved his next blood test forward so he can get over the bug first,this site is very helpful and its nice to be able to talk to someone thats not connected to us but knows

jadziadax 601 posts since
Dec 28, 2009
Currently Being Moderated
5. Mar 30, 2010 7:23 AM in response to: strongbow
Re: my Dad has prostate cancer

Hi to you both

 

I have just recently found your thoughts on this thread, and alot of this mirrors my own.

 

My Father http://cancerchat.cancerresearchuk.org/message/14730#14730/68 years was diagnosed with Advanced Aggressive Prostate Cancer on Xmas Eve 2009...a nice present for us all as it came from nowhere.

 

He started on hormone therapy and since started  with a bone strengthening drug. His Cancer is widespread throughout his whole skeleton. They have just been visiting me, as I don't live in the UK. Although Dad looked 100% better than the Dad I last saw at New Year, I was still alarmed by his greyness and extreme fatigue as the day wears on. I suppose I thought he would be better, or maybe my expectations were higher? In any case, its tough to see someone you love not being themselves.

 

I have 2 small children, 3years and 2 years, and this also added to the problem. Its so upsetting. Its so frustrating. Its just so awful.

 

I know all the facts, and probably know more than the doctors at this stage, however, it still makes it no easier.

 

Hope that both your Dads are doing okay at the moment.

jadziadax 601 posts since
Dec 28, 2009
Currently Being Moderated
8. Jun 17, 2010 5:30 PM in response to: strongbow
Re: my Dad has prostate cancer

 

Hi Strongbow

 

 

Sorry I haven't been in contact of late. You are definitely having a much tougher time of it than me. At least dad is in hospital, so being well looked after. All I can suggest is that you have a 'frank' talk with his Doctors about his condition. In my experience, the more direct you phrase the question, the more direct the answer. Explain that you are going away, and is there likely to be any reason why you CAN'T GO at this time? They should have a really good idea whats going on.

 

 

In my opinion, you should do what you feel is right....bit of a cop out answer I know. However, I have seen people delay holidays etc before, and just end up getting more and more stressed. This isn't good for anyone. Can you get home at short notice if you needed to?

 

 

Do talk to the Doctors and Nurses and sound them out. You might be of more use to dad after a rest from everything, than if you carry on stressed out.

 

 

Good luck. Will be thinking of you.

 

 

With regards and best wishes

 

 

jadziadax

 

 

jadziadax 601 posts since
Dec 28, 2009
Currently Being Moderated
10. Jun 17, 2010 9:08 PM in response to: strongbow
Re: my Dad has prostate cancer

 

Hi again

 

 

 

 

 

I'm sorry to hear that your Dad won't let the Doctors discuss all this with you. I am lucky, my Dad has stated that I have full access to his team, and backed that up with his written consent. It makes things alot easier, especially if I have to ask more difficult questions on their behalf.

 

 

I'm glad that you are going away. I know it won't stop you worrying, but there comes a point when you have to put yourself first, to then be able to carry on your responsibilities to others.

 

 

Hope you have a relaxing time, and come back refreshed, and ready to take up the reigns again.

 

 

Always here if you want to chat anytime. Take real good care of yourself.

 

 

With regards and best wishes as always

 

 

jadziadax

 

 

jadziadax 601 posts since
Dec 28, 2009
Currently Being Moderated
12. Jun 17, 2010 10:02 PM in response to: strongbow
Re: my Dad has prostate cancer

 

Have a great holiday, thats all you need to do !

 

 

With regards and best wishes

 

 

jadziadax

 

 

jadziadax 601 posts since
Dec 28, 2009
Currently Being Moderated
14. Jul 1, 2010 11:56 AM in response to: strongbow
Re: my Dad has prostate cancer

 

Hoping you had a relaxing holiday. Thinking of you all. Take care

 

 

With regards and best wishes as always

 

 

jadziadax

 

 

x

 

 

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